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Carol Gerstein

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@cegerst1938

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    Carol Gerstein replied to the topic Increased oxygen level with activity in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 4 months ago

    Steve, tell me again about your lemon lime routine. I don’t think I could take all the other stuff

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    Carol Gerstein replied to the topic Increased oxygen level with activity in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 4 months ago

    It  reads 192 mL, 5 reads 80 mL.

    Pits a little heavy to put in car but I have gotten use to it.  Depending on what number I’m on the battery lasts 2-4 hours but almost always near an outlet.

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    Carol Gerstein replied to the topic Increased oxygen level with activity in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 4 months ago

    I use a sequel eclipse 5 and have used a sequel equinox, both go to 9 pulse 192 mL. About 18ibs on its own small cart, has ac, dc and battery

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    Carol Gerstein replied to the topic Dealing with Stress as a Patient with PF: A Collective Response. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 4 months ago

    i allow myself a 24 hour pity party,,,,,,,,cry, feel sorry for myself, try to do things i cant, which gets me more depressed.  To get out of it i either work a puzzle, which i forget everything else except the puzzle or draw or paint a picture.  the other day i couldnt do anything, i had just gotten out of the hospital with a mild case of p…[Read more]

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    Carol Gerstein replied to the topic Increased oxygen level with activity in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 4 months ago

    Thank you for answering.  I hope I’m not expecting to much from rehab, just exercising sounds good and I hate to exercise.  I did a stupid thing thing this week and mixed up two meds that I have been taking for at least a year.  I am lowering my prednisone to 15 so I cut my 10s in half, I also take a mild antidepressant, both are white roun…[Read more]

  • Profile picture of Carol Gerstein

    Carol Gerstein replied to the topic Increased oxygen level with activity in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 4 months ago

    I’m on both pulse and continuous, continuous at night and durning Thea’s when I use my home machine.  When I go out I use my pulse. We don’t have liquid oxygen at the ompany I use. How long does rehab usually show something.

    does Charlene ever answer some of these posts, because I thought I read that she was on 15

  • Profile picture of Carol Gerstein

    Carol Gerstein started the topic Increased oxygen level with activity in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 4 months ago

    right now I have been on 9-10 LP oxygen with activity.  My portable goes to 9 so I was still able to be active. I start pulmonary rehab Monday.  I have been home for two weeks from hospital with mild case of pneumonia.  So my question is if I have to go up to 15 with activity how do I still dhave my independence and normalcy.  I have been ina…[Read more]

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    Carol Gerstein became a registered member 3 years, 4 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 4 months ago

      Hello Carol, welcome to your pulmonary fibrosis forum. Thank you for joining and I feel you will find this forum a safe place to discuss all aspects of pulmonary fibrosis.

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