Biography

Name

Carol Gerstein

Nickname

carol-gerstein

Year of Birth

1938

Gender

Female

Location

Missouri

Relationship

Patient

Short Bio

I’ve had “scarring” of the lungs in 2011, which we found out is the beginning of pf.  I have been off and on prednisone or years, sometimes it feels like it’s helping. I do not have coped, just emphasema (sp) and pf, no obstruction.  So no inhalers work.  I went on oxygen 24/7 about 2 years ago, low amounts. Now I am up to 5 at rest and 10-12 at activity.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

St Luke’s in St. Louis monone, except 15 prednisone

Current medication regimen

None.except 15 prednisone

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Since 2011

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