ChArles Bietsch

The primary purpose of head elevation is to prevent silent acid reflux from entering the lungs. There is a strong correlation between GERD and IPF. And several peer reviewed studies have been done to establish the connection

If you have not had a 24 hour reflux test you may consider it to verify. If proven that you do. There are remedies to…[Read more]

Hi I don’t know where you live , or if you are using a local / standard pulmonologist for evaluation

There are a variety of types / conditions that cause fibrosis in the lungs. Ie infection, autoimmune diseases, etc

To set you mind at ease find a pulmonary fibrosis center of excellence near you. Usually they are a specialized ILD d…[Read more]

I can say after having a single 4 1/2 years ago my ipf cough all but disappeared.  Still cough occasionally, but no where as debilitating as before.  The new lung will take over the primary  function . And the native lung will slowly fade…. Though mine has been relatively stable. My view, not a big issue to worry about.  I was 72 at time of Tx at…[Read more]

Charlene…. It would depend upon what type of medication you are on. Some such as cellcept and prednisone are toxic to the liver and kidneys and preservation of their function is necessary for king yet survival. Alcohol of any kind is not recommended

Same if one is contemplating a transplant. Liver and kidneys need to be fully functional to be a…[Read more]

If they suggested a stent it will likely not disqualify you.  If they do it before you will likely have to wait for approx six months as you will be on blood thinners.    Sometimes they take care of it during the Tx surgery depending upon age.

at my evaluation I had two over 60%, did not have stents , still don’t and that was 4 1/2 years ago…[Read more]

Hi… Char

I responded to your article from the standpoint of a person who has gone through the process, and to share my experience and views

The title of the article was the “harsh realities”of lung transplant…, which could infer that your points are fact, and apply to all cases.

While some May experience issues you mention, many do not.

T…[Read more]

Mark….

Some comments  on your post….

Sure your immune system is depressed.  However, you don’t have to move in a bubble.  I have navigated the last two years with no issues and have led no less normal life than others.

It is no more dangerous than navigating the landscape with ipf.  One virus could wipe you out as well. Just be careful…[Read more]

Charlene.  Hi, read your article and sense this is coming from a place of uncertainty and/or fear.

I have to disagree with you on several points…. In particular the title of the article “harsh” reality????

what could be more harsh than living with IPF and not being able to do anything about it???

First, the statement trading one disease for an…[Read more]