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Chris Soper replied to the topic Wrestling with the End Stage of Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 2 months ago
Thank you Christie.
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Chris Soper replied to the topic Wrestling with the End Stage of Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 2 months, 1 week ago
Whilst his Inquest is still to take place I can maybe ‘help’ by describing my late husband’s passing. He died at home in my arms, gasping for breath and begging me to turn the oxygen up. The machines were already at maximum (2x9L), he’d gone through a whole series of face masks with various limiters and faced with his ever-increasing need for…[Read more]
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Chris Soper replied to the topic Help for High Oxygen User Nasal Pain in the forum Using Our Forums 10 months, 3 weeks ago
Agree with Steve, at those levels you’ll probably find a small face mask is better for you.
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Chris Soper replied to the topic Relationship Between Excess Iron & Fibrotic Lung Disease(s) in the forum Join the Discussion: Welcome to all PF/IPF Patients 12 months ago
Interesting…. 12+ years ago my late husband was encouraged to take LIV-52 supplement by a pharmacist in Cyprus to protect his liver (he liked a drink). He started to suffer breathlessness but we didn’t connect the two. In 2016 he was diagnosed as ‘possible IPF’ but never definitively confirmed. His feratin level at one point was 800+ Unexp…[Read more]
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Chris Soper replied to the topic What should I expect as IPF progresses? in the forum Caregivers and Spouses 1 year, 2 months ago
Hugs Vishal. I lost my husband recently – he was on 4 litres O2 on ‘as necessary’ basis but was hospitalised after a fall when he broke his hip and multiple ribs. Very quickly his oxygen requirements increased and when he was discharged four weeks later (still with broken hip and ribs) his prescription was for 12 litres O2 24/7. Thanks to NHS…[Read more]
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Chris Soper replied to the topic Oxygen Increase after a fall and being bedridden in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
Thanks for replying Mark. There is to be a Coroner’s Inquest so maybe that will shed some light.
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Chris Soper started the topic Oxygen Increase after a fall and being bedridden in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
Just to clarify – both my husband and I are called Chris. He has been struggling with increasing breathlessness (‘suspected IPF’) since 2016 and but has coped for the last year or so on 4ltr oxygen on ad hoc/when necessary basis until he broke his hip and was hospitalised. They put him on oxygen 24/7 – whether that was to help with pain man…[Read more]
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Chris Soper became a registered member 2 years, 1 month ago
Hello Chris, we are delighted to have you as a member of your pulmonary fibrosis forum. Welcome!