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Chris O’Hanlon

Home Members Chris O’Hanlon
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@chriso

I have posted on this sight now 4 times without any replies from anyone on this sight. I am only looking for a sight where I can correspond with other IPF patients like myself, obviously I am not going to find this here, sorry I wasted my time. View
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    Chris O’Hanlon posted an update 6 months, 4 weeks ago

    I have posted on this sight now 4 times without any replies from anyone on this sight. I am only looking for a sight where I can correspond with other IPF patients like myself, obviously I am not going to find this here, sorry I wasted my time.

    • Profile picture of Christie Patient
      Christie Patient replied 6 months, 4 weeks ago

      Hi Chris, sorry you have not had any responses on your posts. As I mentioned in my other reply, this is a status update. I took a look at your profile and it looks like all of your posts have been status updates, which no one can see but Charlene and myself, and we have been on alternating turns of personal leave from moderating over the past few…[Read more]

  • Profile picture of Chris O’Hanlon

    Chris O’Hanlon posted a new activity comment 6 months, 4 weeks ago

    Ok is there anyone out there? I realize I am new to this sight, I am a IPF patient only looking to fit in somewhere, I am not a weirdo I am only looking for common ground with other IPF patients, obviously I am not going to find this here. I will continue to look for a sight where people will share and not snub new people looking to belong in a…[Read more]

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    • Profile picture of Jofac O'Handlin
      Jofac O'Handlin replied 1 month, 4 weeks ago

      Hi Chis, we share a common / uncommon surrname. I bekieve that my ILF is genetic as my sister died from it aged 85. If it is genetic as I am male, it would have come via our common X chromosome so from our mother. Her father died young, so it may have been his X that carried it, therfore, my daughter may have received it. Make one think.
      Regards, Joe

  • Profile picture of Chris O’Hanlon

    Chris O’Hanlon posted an update in the group Group logo of Research and DevelopmentResearch and Development 6 months, 4 weeks ago

    I am looking into going to a “Salt Room” I have gotten mixed messages on such treatment. I asked my pulmonologist about them and he just shook his head.
    I have gone on line and read where people have benefited from going to these salt rooms. I have decided to make an appointment this Wed. to go to one locally only because it can’t hurt. I am wo…[Read more]

    • Profile picture of Chris O’Hanlon
      Chris O’Hanlon replied 6 months, 4 weeks ago

      Ok is there anyone out there? I realize I am new to this sight, I am a IPF patient only looking to fit in somewhere, I am not a weirdo I am only looking for common ground with other IPF patients, obviously I am not going to find this here. I will continue to look for a sight where people will share and not snub new people looking to belong in a…[Read more]

      • Profile picture of Jofac O'Handlin
        Jofac O'Handlin replied 1 month, 4 weeks ago

        Hi Chis, we share a common / uncommon surrname. I bekieve that my ILF is genetic as my sister died from it aged 85. If it is genetic as I am male, it would have come via our common X chromosome so from our mother. Her father died young, so it may have been his X that carried it, therfore, my daughter may have received it. Make one think.
        Regards, Joe

    • Profile picture of Christie Patient
      Christie Patient replied 6 months, 4 weeks ago

      Hi Chris, you’ve posted a status update, which only moderators will see. If you’d like to post this as a topic in the forums for other members to respond to, select a forum from the homepage and scroll to the bottom of the page to the textbox there. “Join the Discussion” is a good place to start. Locked groups such as “Research and Develop…[Read more]

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    Chris O’Hanlon joined the group Group logo of Research and DevelopmentResearch and Development 6 months, 4 weeks ago

  • Profile picture of Chris O’Hanlon

    Chris O’Hanlon replied to the topic Tyvaso for IPF in the forum Clinical Trials 7 months, 1 week ago

    Hi Charlene,

    as I mentioned before I am new to the sight and just selected for the Tyvaso trial, I don’t know if I have the drug or placebo. This is my 2nd week and I am up to 6 puffs 4 times a day, I feel good in the mornings and I get my walks and swims in then. While walking I am on my oxygen pack, obviously not with swimming. I really c…[Read more]

  • Profile picture of Chris O’Hanlon

    Chris O’Hanlon posted an update 7 months, 1 week ago

    Hello,
    I am new to this sight, I have been diagnosed for 1 1/2 yrs., I am on OFEV 150mg twice a day, and have just started the Tyvaso trial. I walk my dog Molly 3-4 times a day on oxygen while I walk and I swim laps 3 times a week. I live in Council Bluffs Ia. My Dr. is in the Creighton Pulmonary Clinic

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    Chris O’Hanlon changed their profile picture 7 months, 1 week ago

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    Chris O’Hanlon became a registered member 7 months, 1 week ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 7 months, 1 week ago

      Thanks for joining the PF forums Chris. Welcome!

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