@chriso
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Chris O’Hanlon posted an update 6 months, 4 weeks ago
I have posted on this sight now 4 times without any replies from anyone on this sight. I am only looking for a sight where I can correspond with other IPF patients like myself, obviously I am not going to find this here, sorry I wasted my time.
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Chris O’Hanlon posted a new activity comment 6 months, 4 weeks ago
Ok is there anyone out there? I realize I am new to this sight, I am a IPF patient only looking to fit in somewhere, I am not a weirdo I am only looking for common ground with other IPF patients, obviously I am not going to find this here. I will continue to look for a sight where people will share and not snub new people looking to belong in a…[Read more]
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Hi Chis, we share a common / uncommon surrname. I bekieve that my ILF is genetic as my sister died from it aged 85. If it is genetic as I am male, it would have come via our common X chromosome so from our mother. Her father died young, so it may have been his X that carried it, therfore, my daughter may have received it. Make one think.
Regards, Joe
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Chris O’Hanlon posted an update in the group
Research and Development 6 months, 4 weeks agoI am looking into going to a “Salt Room” I have gotten mixed messages on such treatment. I asked my pulmonologist about them and he just shook his head.
I have gone on line and read where people have benefited from going to these salt rooms. I have decided to make an appointment this Wed. to go to one locally only because it can’t hurt. I am wo…[Read more]-
Ok is there anyone out there? I realize I am new to this sight, I am a IPF patient only looking to fit in somewhere, I am not a weirdo I am only looking for common ground with other IPF patients, obviously I am not going to find this here. I will continue to look for a sight where people will share and not snub new people looking to belong in a…[Read more]
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Hi Chis, we share a common / uncommon surrname. I bekieve that my ILF is genetic as my sister died from it aged 85. If it is genetic as I am male, it would have come via our common X chromosome so from our mother. Her father died young, so it may have been his X that carried it, therfore, my daughter may have received it. Make one think.
Regards, Joe
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Hi Chris, you’ve posted a status update, which only moderators will see. If you’d like to post this as a topic in the forums for other members to respond to, select a forum from the homepage and scroll to the bottom of the page to the textbox there. “Join the Discussion” is a good place to start. Locked groups such as “Research and Develop…[Read more]
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Chris O’Hanlon joined the group
Research and Development 6 months, 4 weeks ago -
Chris O’Hanlon replied to the topic Tyvaso for IPF in the forum Clinical Trials 7 months, 1 week ago
Hi Charlene,
as I mentioned before I am new to the sight and just selected for the Tyvaso trial, I don’t know if I have the drug or placebo. This is my 2nd week and I am up to 6 puffs 4 times a day, I feel good in the mornings and I get my walks and swims in then. While walking I am on my oxygen pack, obviously not with swimming. I really c…[Read more]
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Chris O’Hanlon posted an update 7 months, 1 week ago
Hello,
I am new to this sight, I have been diagnosed for 1 1/2 yrs., I am on OFEV 150mg twice a day, and have just started the Tyvaso trial. I walk my dog Molly 3-4 times a day on oxygen while I walk and I swim laps 3 times a week. I live in Council Bluffs Ia. My Dr. is in the Creighton Pulmonary Clinic -
Chris O’Hanlon changed their profile picture 7 months, 1 week ago
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Chris O’Hanlon became a registered member 7 months, 1 week ago
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Thanks for joining the PF forums Chris. Welcome!
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Hi Chris, sorry you have not had any responses on your posts. As I mentioned in my other reply, this is a status update. I took a look at your profile and it looks like all of your posts have been status updates, which no one can see but Charlene and myself, and we have been on alternating turns of personal leave from moderating over the past few…[Read more]