@christeen
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christeen replied to the topic Hanging Onto Hope as an IPF Patient in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 1 month ago
Thank you Charlene. I am so grateful to this forum and how each one of us are coping with this Illness.
May God Bless us all -
christeen replied to the topic Hanging Onto Hope as an IPF Patient in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 1 month ago
Hello Charlene,
I am suffering with IPF since 2016. I am a Christian, and my Hope is in God and God alone. I do take my medication (pirfenidone) and have oxygen carrier. I pray everyday and cling on to hope that nothing is impossible to God and he can heal me. This gives me hope and a desire to carry on.
God Bless
Christeen -
christeen posted an update 2 years, 4 months ago
I am on Esbriet (Pirfenidone) for the last 3 years. so far I don’t have any side-effects. The problem I am encountering is my cough is getting very bad these days.
In the night when I turn from one side to another I cough a lot and that wakes me up. Breathlessness is another issue these days, especially when I walk up and down the stairs. My O2…[Read more] -
christeen replied to the topic Taking time off from esbriet in the forum Esbriet (Pirfenidone) 2 years, 5 months ago
Thank you Paul. Christeen
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christeen posted an update 2 years, 5 months ago
Cell Model for IPF
Are we expecting good news for IPF sufferers by this model? -
christeen replied to the topic Taking time off from esbriet in the forum Esbriet (Pirfenidone) 2 years, 5 months ago
I am thankful to God that so far I have not had any trouble since I started taking it except dry skin during summer and occasional rash when some medication don’t agree with it. Dry skin is the only bad reaction to it so far. christeen
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christeen posted a new activity comment 2 years, 6 months ago
Thank you, So am I.
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christeen became a registered member 2 years, 6 months ago
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Hello Christeen, we are delighted to have you as a member of the pf forum. Welcome!
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Thank you, So am I.
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Hello Christeen, pre-transplant I avoided stairs like the plague. Hopefully your cough is being caused by some inflammation and not a decline in lung function. I encountered similar symptoms pre-transplant. As soon as stood up from a chair my heart rate erupted into the 130s. I would increase my o2 another level to avoid decreasing 02 sats. I also…[Read more]