@christine-walters
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Christine Walters posted an update 4 years, 11 months ago
Hi, I’ve been doing some reading about mold and this disease. It seems that it can cause PF? I lived for about two years where there was mold in my A/C air return which means the mold spores were being blown out my vents to all parts of my home. This was caused by a mistake on the original builders back in 1986. It didn’t seem to be a problem…[Read more]
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Christine Walters posted a new activity comment 4 years, 11 months ago
Good news and bad news. My condition isn’t bad enough for any kind of special considerations for help per rehab and my doctor’s office. I guess I’m just worrying.
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Hi Christine,
Yes this is good news, but the worry is understandable. For now take it day by day and just be vigilant in documenting how you are feeling, should there ever come a need for you to advocate for your health. Best wishes to you and I hope your disease continues to be stable for quite some time.Warm regards,
Charlene.
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Christine Walters posted an update 4 years, 11 months ago
Hi, After going to pulmonary rehab, I’ve discovered I can’t walk at my normal pace without needing oxygen. I want to continue going after what medicare pays for but the valet parking is going to be a bit expensive for me at $6 plus tip twice a week. It will be half that if I have a handicap sign in the car. Will the doctor say I need a…[Read more]
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Hi Christine,
These are all great questions, and I hope someone will be able to help answer your Medicare questions as this is something I am unfamiliar with being a Canadian. Can anyone advise if a portable oxygen concentrator (POC) would be covered by medicare? I would imagine it would @christine-walters, especially if your doctor write a…[Read more]
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Good news and bad news. My condition isn’t bad enough for any kind of special considerations for help per rehab and my doctor’s office. I guess I’m just worrying.
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Hi Christine,
Yes this is good news, but the worry is understandable. For now take it day by day and just be vigilant in documenting how you are feeling, should there ever come a need for you to advocate for your health. Best wishes to you and I hope your disease continues to be stable for quite some time.Warm regards,
Charlene.
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Christine Walters posted a new activity comment 4 years, 11 months ago
Hi, My doctor hasn’t ordered anymore tests for RA but maybe I need to go to rheumaologist if this gets worse. So far heat and rest have gotten rid of it. I’m someone who worries about things and this illness is so diverse in how effects people. I wonder what is going to happen next. Thanks for your input. It helps to know other people are…[Read more]
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Christine Walters posted an update 4 years, 11 months ago
Hi, I have known I have PF for about 2 months now. Even before being diagnosed, I have found that doing work that required me being on my knees has left me with severe knee pain later that night. The good news is that after sleeping I wake with almost no pain at all. My doctor said the blood test for rheumatoid arthritis was questionable. I…[Read more]
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Hi Christine,
Thank you so much for contributing your experience to the topic of pain associated with PF. I’m so sorry to hear of your knee pain, but am grateful that rest and sleep seems to alleviate it for you. I hope it stays like that for you!
Did your doctor mean that the blood test for RA was inconclusive, meaning he/she wasn’t sure if it…[Read more]
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Hi, My doctor hasn’t ordered anymore tests for RA but maybe I need to go to rheumaologist if this gets worse. So far heat and rest have gotten rid of it. I’m someone who worries about things and this illness is so diverse in how effects people. I wonder what is going to happen next. Thanks for your input. It helps to know other people are…[Read more]
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Hi Christine,
I completely agree that this disease is so uncertain and definitely not linear: meaning the development of the disease can be different for each person, and diverse in how it progresses. Try not to let your mind get the best of you though, or jump to conclusions that may not be accurate. I know this is easier said than done, and it…[Read more]
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Hi Christine,
Thanks for your question – it is a good one and has certainly gained a lot of interest from other PF patients. Just recently another member of the forums posted a question about asbestos-related IPF. We’ve been spending time collecting responses from other patients’ experience with being told whether or not their diagnosis was due…[Read more]