Short Bio |
My diagnosis with scleroderma was 18 years ago – prognosis of 12 years was given
My diagnosis with pulmonary fibrosis was 7 years ago – prognosis of 4 years was given
I am STILL alive.
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Treatment / Medical Facility |
UTSW MC
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Current medication regimen |
None – Oxygen when flying
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Best advice for PF symptom management |
recommended pulmonary rehab exercises; walking slower; talking slower; carry a pulse oximeter with you; be aware of when you get short of breath; stop/rest/recover; ask for help
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