@ciookie
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Joan ciccarelli replied to the topic Extreme Fatigue in the forum Living with Pulmonary Fibrosis: 50+ 4 months, 1 week ago
Hi
I have had ipf for a long time i am getting
Problems with what i call attacks of real bad
Out of breath doing almost nothing the only thing I can say is get into bed or find what you call your safe place and try very hard to relax i know how hard itbis i am even on oxygen i feel i have a very good lung doctor but with this virus hevonly…[Read more] -
Joan ciccarelli replied to the topic Possible Cause of IPF – Ammonia ingestion and Statin?? Progressive? in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 2 weeks ago
Hi I have if have had it for years no one actually knows what caused this awful disease
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Joan ciccarelli replied to the topic Laser and ipf in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 1 month ago
I have asked my doctor re lazzer and he has not got back to me yet I am on oxygen liquid a d air 24 7 take prednisone which bells quite a bit also have a puffer and have morphine if I need it my doctor is usually pretty good but due to the virus he only phones me in Canada lazzer may be hard to fi d
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Joan ciccarelli posted a new activity comment 1 year, 6 months ago
Hi karen
We are lucky to still be alive as this disease takes some people real early my doctor is really not up to the lazzer i will be talking g to him on monday no office visits with this virus but he was the one who realized what i had one doctor tried puffers and said i do not know what this is goodbye . I was shocked but luckily i found dr…[Read more] -
Joan ciccarelli posted an update 1 year, 6 months ago
@nimrod hi i am new to this i have had ipf since 2006 i am on oxygen 4 when i walk and i have liquid oxygen and straight oxygen
This forum is very interesting wish i had it when i first started with iof-
I’ve had it for about 20 years, it started with Raynauds .I’m on 2 liters .i.e. Taking ofev now to slow down the fibrosis in my lungs.
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Hi karen
We are lucky to still be alive as this disease takes some people real early my doctor is really not up to the lazzer i will be talking g to him on monday no office visits with this virus but he was the one who realized what i had one doctor tried puffers and said i do not know what this is goodbye . I was shocked but luckily i found dr…[Read more]-
I have great Dr’s I go to northwestern downtown Chicago.Where are you at?
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Joan ciccarelli posted a new activity comment 1 year, 6 months ago
Thank you
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You are most welcome Joan!
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Joan ciccarelli became a registered member 1 year, 6 months ago
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Hello Joan, thank you for joining your pulmonary fibrosis forum. Welcome!
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Thank you
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You are most welcome Joan!
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I have great Dr’s I go to northwestern downtown Chicago.Where are you at?