• Joan ciccarelli posted an update 1 year, 8 months ago

    @nimrod hi i am new to this i have had ipf since 2006 i am on oxygen 4 when i walk and i have liquid oxygen and straight oxygen
    This forum is very interesting wish i had it when i first started with iof

    • I’ve had it for about 20 years, it started with Raynauds .I’m on 2 liters .i.e. Taking ofev now to slow down the fibrosis in my lungs.

      • Hi karen
        We are lucky to still be alive as this disease takes some people real early my doctor is really not up to the lazzer i will be talking g to him on monday no office visits with this virus but he was the one who realized what i had one doctor tried puffers and said i do not know what this is goodbye . I was shocked but luckily i found dr perle hope you have a great doctor

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