Pulmonary Fibrosis News Forums | Joan ciccarelli | Activity https://pulmonaryfibrosisnews.com/forums/members/ciookie/activity/ Activity feed for Joan ciccarelli. Fri, 24 Apr 2026 17:14:23 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 7cc4b44f4a3ded8fda9ca7693a5cccbc Joan ciccarelli replied to the discussion Extreme Fatigue in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/extreme-fatigue/#post-31072 Wed, 16 Feb 2022 16:22:15 -0600 Reply to Extreme Fatigue

Hi
I have had ipf for a long time i am getting
Problems with what i call attacks of real bad
Out of breath doing almost nothing the only thing I can say is get into bed or find what you call your safe place and try very hard to relax i know how hard itbis i am even on oxygen i feel i have a very good lung doctor but with this virus… Read more

]]> f60033f015e73b4e037118a4c57a4ead Joan ciccarelli replied to the discussion Possible Cause of IPF - Ammonia ingestion and Statin?? Progressive? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/possible-cause-of-ipf-ammonia-ingestion-and-statin-progressive/#post-31023 Thu, 10 Feb 2022 16:16:42 -0600 Reply to Possible Cause of IPF - Ammonia ingestion and Statin?? Progressive?

Hi I have if have had it for years no one actually knows what caused this awful disease

]]> 228a6678009d2b9d9087b7e46dc1ee75 Joan ciccarelli replied to the discussion Laser and ipf in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/laser-and-ipf/#post-28259 Fri, 07 May 2021 19:02:13 -0500 Reply to Laser and ipf

I have asked my doctor re lazzer and he has not got back to me yet  I am on oxygen liquid a d air 24 7 take prednisone which bells quite a bit also have a puffer and have morphine if I need it my doctor is usually pretty good but due to the virus he only phones me in Canada lazzer may be hard to fi d

]]> 2354fcb85a7ebae24e3ec4557ddc0cb4 Joan ciccarelli posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/24079/#acomment-24110 Fri, 11 Dec 2020 02:45:47 -0600 Hi karen
We are lucky to still be alive as this disease takes some people real early my doctor is really not up to the lazzer i will be talking g to him on monday no office visits with this virus but he was the one who realized what i had one doctor tried puffers and said i do not know what this is goodbye . I was shocked but luckily i found… Read more

In reply to - Joan ciccarelli posted an update @nimrod hi i am new to this i have had ipf since 2006 i am on oxygen 4 when i walk and i have liquid oxygen and straight oxygen This forum is very interesting wish i had it when […] ]]> a8c2caf529abbc784b5c50a9a1f18b7e Joan ciccarelli posted an update: @nimrod hi i am new to this i have had ipf since 2006 i […] https://pulmonaryfibrosisnews.com/forums/activity/p/24079/ Thu, 10 Dec 2020 02:44:43 -0600 @nimrod hi i am new to this i have had ipf since 2006 i am on oxygen 4 when i walk and i have liquid oxygen and straight oxygen
This forum is very interesting wish i had it when i first started with iof

]]> 3 dcb2d3deaf0ab352d96610b2b3616bb8 Joan ciccarelli posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/24069/#acomment-24078 Thu, 10 Dec 2020 02:34:54 -0600 Thank you

In reply to - Joan ciccarelli became a registered member ]]> 587413362cdfc8d806e79836b304dfce Joan ciccarelli became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/24069/ Wed, 09 Dec 2020 19:50:24 -0600 3