@clam451
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Anita C replied to the topic Life span in the forum Diagnosis Information and General Questions 7 months, 2 weeks ago
I was diagnosed with Hypersensitivity Pneumonitis and resultant Pulmonary Fibrosis at age 40 and transplanted at age 62. Four separate medical reviews including National Jewish in Denver. Began using O2 about 2 years prior to surgery. Now 6.25 years post-Txp.
There IS HOPE! Don’t lose yours.
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Anita C replied to the topic Successful lungs transplant stories in the forum Pre/Post Lung Transplant 7 months, 2 weeks ago
Happy to share! I am Six Years + 3 Months post double lung Txp. My lungs were rejected by two others but came to me during what would have been my Final Days. I was dying. So we jumped at the opportunity despite the lack of adequate medical history on the donor. (Perhaps family-less? Institutionalized?) I’ll never know how or why a miracle…[Read more]
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Anita C posted an update 11 months ago
@christie-patient Thank you thank you! For your lengthy and well researched response re: life post-Txp. I support everything you shared. I was taken aback and shocked by the misconceptions/misinformation in a couple comments. You are quite the advocate snd hooray for you. I’m trying to be that, too. I had PF for 22 years and then a double lung Txp…[Read more]
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Anita C's profile was updated 11 months ago
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Anita C became a registered member 1 year ago
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Thanks for joining the PF forums Anita. Welcome!
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Thank you, Anita, I appreciate the recognition. There is so much info out there that is anecdotal, or even in some cases rumor/hearsay about transplant. Of course, it’s less likely that we will see success stories in this forum because people who survive and have successful, healthy transplants don’t go looking for support groups. I know not every…[Read more]