• Cliff Cleary changed their profile picture 3 years, 7 months ago

    • Hi Cliff, welcome to the PF forums. Thanks for joining us!

      • Thanks Charlene, I’ve been reading your articles for a while now so I thought it was about time I joined in!

        • I am so glad you have joined us Cliff! We’re all in this together, feel free to write any questions or post about topics you’re interested in learning more about. There is a wonderfully supportive group of folks on here who will help in any way we can.

          Welcome again and I look forward to getting to know you a bit more through the forums.

          Warm regards,
          Charlene.

          • Thanks Charlene, I’m also a part of a group of IPF diagnosed gentleman only because we haven’t had any ladies join yet. We call ourselves the “Bung Lung Mob” I came up with the name as I wanted to try and have fun as well as sincere support.
            Myself and another gentleman also do some phone call support for the Lung Foundation Australia around the country.

            Cheers Cliff

            • Hi Cliff,

              That is amazing, thank you so much for sharing! Humour and fun amidst this diagnosis is so important, isnt it?

              I actually have a wonderful story about the Lung Foundation Australia. Have you ever heard of a gentleman named Tony Hyams? He had IPF and had a life-saving double lung transplant in Melbourne at the Alfred in December 2016. When I was in Australia in 2015 & 2016, he and I met and had lunch and he is now one of the directors of the Lung Foundation Australia. He is such an incredible man, and I do hope to get back down to visit him and his family next year in 2019 pending my health is maintained. I sure love Australia! It is a beautiful country. Whereabouts are you located? When I was there for my Masters I visited SA, Vic and NSW. 🙂

              Cheers,
              Charlene.

            • Hi Charlene,
              I don’t know of Tony but that’s only because I have been contacted by someone else. We have a seminar coming up on the 28th April so I should get to meet him then so I will introduce myself and tell him you said hello!

              I live in outer eastern suburbs of Melbourne, Victoria. I see the same transplant team that he probably would have had at the Alfred, My home is in a little town named Monbulk in the Dandenong Ranges.
              Would you mind if I sent you a PM?
              Cheers Cliff

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