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Mike Clifford replied to the topic Possible Cause of IPF – Ammonia ingestion and Statin?? Progressive? in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 1 week ago
Cecil,
Sorry to hear of your diagnosis. As John said above I’m also not a doctor and believe the progression will be faster without one of the antifibrotics than taking one. We’re all different so who knows how the disease will progress in anyone of us but it will progress. If you’re a gambling person perhaps you’d put off the therapy till yo…[Read more]
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Mike Clifford replied to the topic Has OFEV been effective in slowing your progression? in the forum Ofev (Nintedanib) 1 year, 3 months ago
Really good question that should be easy to answer but isn’t. I’ve been on OFEV for about 16 and a half months. Had a baseline PFT in June 2019 then a follow up in Dec 20 (started OFEV in Jan 20). There was a very slight decline in most measures. Had another follow up PFT in April 2021. Slight declines continue but rate of decline seem to be inc…[Read more]
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Mike Clifford replied to the topic Investigation in the forum Using Our Forums 1 year, 8 months ago
Auriela,
I had a complete work up in the spring of 2019 for shortness of breath on exertion. The work up was mainly cardiac in nature as my family history has a number of cardiac issues. Cardiac was fine but you already know the rest of the story. I’m 68 and in good physical condition. The only pill I take is Ofev. I can still walk a couple of…[Read more]
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Mike Clifford replied to the topic Investigation in the forum Using Our Forums 1 year, 8 months ago
Hi Aurelia,
Got my diagnosis of IPF about a year ago. Had a chest X-ray in the spring that showed interstitial lung disease. A high res CT scan was inconclusive so I had a lung biopsy. It was done using a DaVinci robot and was a breeze. I was out for it but it took all of 10 minutes and there was little to no discomfort. I felt like I could’ve g…[Read more]
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Mike Clifford became a registered member 1 year, 11 months ago
Hello Mike, welcome and thank you for joining your pulmonary fibrosis forum.