Cloud Mason

Hi Mark, ( @mark-koziol )

I was diagnosed with IPF in May 2017. Working at a large university was increasingly difficult at my condition progressed.  Like David, I work from home. I’m a Software Developer/Analyst and am blessed with an understanding boss and an employer who encouraged me to apply for a disability accommodation which was granted.…[Read more]

Awesome work, Katie. You live in such a beautiful area.

~cloud~

Hi, Charlene and Katie,

I’m a serious film enthusiast and have put both films on my must-see list. I have encountered only two people out of all my family and friends who had ever heard of pulmonary fibrosis. I can’t begin to tell you how many times I’ve been asked, “What’s the name of that thing you have.”   Any movie that increases awareness of…[Read more]

Hi Katie,

Sharing your Dad’s passion for photography is surely a wonderful thing. I’m an extremely serious amateur photographer. I’ve had the bug for over 50 years. Here are a few tips:

• The best camera is the one you have with you.
• You don’t need an expensive DSLR to take great photos. iPhones and others have excellent cameras with…

[Read more]

The sleep study was done several years prior to the IPF diagnosis. I had been experiencing Excessive Daytime Sleepiness. After a plethora of tests and different medications, my GP finally decided that a sleep study was called for. I had gained a lot of weight in the prior year (~30 pounds) which my neurologist said often triggers sleep apnea. I…[Read more]

Hi Charlene,

For most of my life, I thought that I slept on my side throughout the night until I had a sleep study done. After the study, my neurologist told me that I have acute sleep apnea. He also informed me that although I go to sleep and wake up on my side, the remainder of the night I sleep flat on my back. I had a knee replacement three…[Read more]