Biography

Name

Coby Knox

Nickname

Coby

Last Name

Knox

Year of Birth

1951

Gender

Male

Location

Boerne, Texas

Relationship

Patient

Short Bio

 

Retired Energy Energy business. Father died of IPF 20 years ago. Diagnosed with PF, RA and Myopathy in May 2022.  Had 90% of Lung Capacity in 2022. Using Retuxan infusions to control my RA and prevent further scarring. Using exercise and Functional Health diet and supplements to improve my health and expand my lung capacity, which has improved to 97% in April 2023 and 107% in June 2024. Have resumed longer hikes and snowboarding.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

National Jewish Health, Denver

Current medication regimen

Retuxan infusions, 7% salt nebulizer with Aerobika or Volara devices.

Lung transplantation status

to be determined

Supplemental Oxygen

no

Best advice for PF symptom management

 

Exercise daily & work to maintain good lung Hygiene and expand lung capacity. Use 7% salt nebulizer 2X daily with Aerobika or Volara devices.
For me, walking daily,
swimming, and Pilates twice a week , weights 3x week and real food Functional Medicine diet with everything fresh, Organic, grass fed is healing and making a big difference.

 

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Since 2022.

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