Ibraproprium bromide has been the best solution for the constant nasal drip and drain. Two squirts at night good for the night and most of next day.

I take the portable and I cannot do the water shooting in, makes me gag so they put it on half and they hand scale mostly. Also I do get really anxious in the dentists chair so I don’t let them put me all the way back like they would like to. Sorry for them but I am paying for the service and they know my issues. I do take a .25 of Xanax a hour…

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Have to say I agree with those who replied that you should find another doctor. Just telling you it’s up to god is a lousy way to help someone. If you have a university hospital anywhere within 3-4 hours go there they at least will have whatever might help.

Can’t believe without having all your tests your doc prescribed a whole litany of things. I have been dealing with pf since 2014 and I would say more than half the pulmonologist’s I have seen are not to impressive. Medicare does have a procedure before they will ok a concentrator and oz , as someone posted above. call your doctors office back…

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as some participants have noted most doctors will not do anything other than what BI or FDA tells them. I do believe some of the people have doctors who recognize that we do know our own bodies and tell you to follow that. Most do not know enough about our disease to even understand what we are asking them. the healthcare here in florida for… Read more

as some participants have noted most doctors will not do anything other than what BI or FDA tells them. I do believe some of the people have doctors who recognize that we do know our own bodies and tell you to follow that. Most do not know enough about our disease to even understand what we are asking them. the healthcare here in florida for… Read more

love the gladiolus,crocus,forsthyia ,cherry blossoms,but oh my the allergies make my breathing so much worse. am on pred now 30 mg.day with exasperation trying to still do rehab but the allergies dont help a bit. i do claritin pill,azelestine 1% nasal spray and still have trouble,BUT soon it will be to hot and another set of troubles!!

conni b

I am also very interested in laser therapy. Don’t want to increase collagen for sure. When we have used it in the dogs it was for healing wounds etc,so why is this different?

conni borwick

I think the one reality here is that Ofev does not cure or fix anything,like breathing,it simply slows the progression of the disease. Doctors for sure will never do something the drug company doesn’t reccommend or fda approves. But as a thinking human being I can make choices on dosage.

Since I do not have ipf but rather… Read more

I have been struggling with leg muscle pain for over a year. I exercise as much as I can with breathing issue. I kept wondering what else could be causing this weakness and discomfort. I rode horses for 40 years,was a runner, and ran agility with my dogs ,so my leg muscles were strong. Wish we could get a response from ofev.

I was 75 yrs old when the pulmonologist at Shane’s hospital suggested I consider a transplant. I am on o2 at night and when I exercise. I read the entire protocol on their website and it was very complete. A day to day synopsis from evaluation to surgery.

I also have osteoporosis and I factored that in my decision to not go for an evaluation.… Read more

I use Chinese herbs from my doctor and have had minimal side effects from the Ofev when I take them first thing in the am.

Same exercise Che ghung or qu gong ,many different spellings 😬 I also Find I am more relaxed and energetic. It also seems to help if I am having a bad coughing spell. Acupuncture also really helps me relax and depending on where she sticks me…can super energize me, very weird. I know you are supposed to do the pulmonary rehab exercises… Read more

My acupuncturist suggested Che hung similar to tai chi great tool. You can find videos on line I have 2 I like one is a full hour the other 20 minutes these are calming not just breathing. I also like a pranayama breathing class it should not make you anxious you should be comfortable  with the inhale exhale at your own pace. There is no right… Read more

I cannot get the article you referenced and am very interested in it. When I click on it it just says page not found. Also where are you getting your laser treatment

thank you so much for a really interesting thread

hi,

I have been diagnosed with HP also and could not take cellcept or imuran.  I have been on Ofev with minimal side effectsand the green tea extract., and am hopeful that the studies are correct and it slows the progression.  I live in Florida, today the heat index was 110 degrees and we have really high humidity. I could only be outside for… Read more

Pulmonary rehab was so boring for me 🥴 I have always been active,gone to the gym,etc. all my life. Always my exercise was outside based. Training horses,then dogs,running agility,tracking etc. working my border collie on sheep…so my emotional painful struggle is trying to get excited about exercise inside😩I have a couple of good programs… Read more