Viewing 3 reply threads
  • Author
    Posts
    • #29448
      Rebecca Bloch
      Participant

      Hello, and thank you all for the wealth of knowledge and support you provide on a daily basis!

      I was diagnosed with IPF in December of 2020. I am 63 years old. I was referred to a Pulmonologist because of shortness of breath and dry cough.  My CT scan showed some scarring.  I have a history of asthma and environmental allergies,, and smoked for 7 years (quit in 1982).  I had a biopsy (not the open kind, but one where they go in through the throat).

      My 52 years old sister was diagnosed with Emphysema a few years ago, and was also diagnosed with IPF in December of 2020.

      I see a Naturopath as well as a Pulmonologist.  I have done some research and working with my Naturopath have developed the protocol outlined below.  It is working well for me, as my latest Pulmonary Function Test showed some improvement.

      1. Omeprazole 20mg – 1 daily
      2. Serrapeptase Pro 100,000 SPU – 2 daily on empty stomach
      3. Nattokinase 2000 FU/100mg – 2 daily on empty stomach with 10 oz. of water
      4. Epigallocatechin gallate (EGCG) 225 mg – 1 daily
      5. Sitopaladi Churna (this is an Ayurvedic Medicine for cough.  I find it really helpful.  I add it to hot water with a little honey) 1/4 tsp – 2 daily

      Here are my questions.

      In the study about EGCG that I read on this site, it recommended 600 mg daily.  I’m wondering whether it’s worth increasing my dosage,  or since I’m taking Serrapeptase and Nattokinase, keep it at the lower dosage? What have others experiences been with EGCG?

      Have others taken both the EGCG and the systemic enzymes (Serrapeptase and Nattokinase)?

      Since the systemic enzymes are anti-fibrotics, does anyone have experience with taking them along with Ofev or Esbriet?

       

      For those wanting more information about Sitopaladi Churna, here is a link

      Sitopaladi Churna Benefits, Ingredients, Dosage & Side Effects (ayurtimes.com)

       

      Thank you so much for being here!

      Warm Regards,

      Rebecca

       

       

       

       

    • #29663
      Hans M. Fink
      Participant

      Hello Rebecca,
      Thank you for the information on Systemic Enzymes.
      I have not tried it yet but am very interested I getting all the ingredients.
      Because I am currently on Ofev whose side-effects caused a lot of weight loss, decided to stop ECGC.
      Where would one usually find all the items you describe?

      Sincerely,
      Hans Fink (Windsor, Canada)

      • #29699
        Rebecca Bloch
        Participant

        Hello Hans,

        I purchase mine through the Wellevate website, because my naturopath uses that site to make recommendations and then I can easily log on and order what she recommends.  The brands I use are

        Serrapeptase Pro by EnzymeScience, Nattokinase 100 mg by AllergyResearchGroup and EGCG by designs for health.

         

        I haven’t experienced the weight loss taking the EGCG perhaps because I’m only taking 225mg.  It’s also decaffeinated, and I noticed not all EGCG supplements say that.

        Sincerely,

        Rebecca Bloch

         

         

         

    • #29680
      conni
      Participant

      I use Chinese herbs from my doctor and have had minimal side effects from the Ofev when I take them first thing in the am.

      • #29704
        Karen Boettin.
        Participant

        What are you taking I can’t quit puking a lot on the morning dose takes about 2 hours thx

    • #29703
      Steve Dragoo
      Participant

      @christie-patient – Hi – I made 2 posts on different threads and I don’t see them. Has something changed?  Thanks – Steve

Viewing 3 reply threads
  • You must be logged in to reply to this topic.

©2021 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account