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Sheila D replied to the topic My life has turned upside down in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 6 days ago
Rumma
Please don’t heat honey in microwave research how best to melt it i use normal saltine water in melts with out having to heat it. I have used it for about 2 months my ct scan from 3 months ago(slight growth for the last 1 1/2) shows fibrous to be stable but no results on fibrous at this point -
Sheila D joined the group
Research and Development 1 month, 3 weeks ago
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Sheila D replied to the topic Meeting BMI in the forum Meeting Weight Qualifications for Transplant 1 month, 4 weeks ago
- Yes, I have a high BMI to and I was told to lose weight but I was also told that I was too old I’m 69 I don’t know what the age limit is but lung transplant from what I’ve read there’s only 6 1/2 years really?
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Sheila D replied to the topic Covid causing pulmonary fibrosis in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 months, 1 week ago
I too had covid pneumonia in 2021 which cause honey combing and lack of oxygen i am now on 1 while sitting and 4 if i walk slow. I had lung issues but covid pneumonia definitely made it worse yes i have had several CT scans
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Sheila D replied to the topic Systemic Enzymes, with or without prescription anti-fibrotics in the forum Diagnosis Information and General Questions 2 months, 1 week ago
I take green tea extract/EGCG 750 mg 98% it has caused no ill effects. I have gotten rid of my acid reflex within a month, doing apple cider vinegar twice a day with water and a sweetener. Now, if I have issues, I do apple cider vinegar, gummy‘s they work. But I don’t have any prescription at this point in time. I have had PF for about a year and…[Read more]
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Sheila D replied to the topic Using supplemental oxygen in the forum Diagnosis Information and General Questions 2 months, 2 weeks ago
I have been on supplement oxygen for about 1 year at first they told me 1 while sitting and 4 when walking. I live at sea level. After 9 months i was able to not wear my oxygen while sitting or laying down. I use an oximeter and check it’s bee running 94. When i do a normal walk( slower than a year ago i have my oximeter. If i move to fast my o…[Read more]
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Sheila D replied to the topic Hiatus Hernia in the forum Diagnosis Information and General Questions 6 months, 3 weeks ago
Last year my Ct scan and endoscopy showed a 4-5 cm a hiatus hernia.i did 2 things that I believe helped me. I sta An anti-inflammatory diet. I also started 2x per day a regiment of ACV , 8 oz water and stevia. I stuck to it for a month. My acid reflux is gone, un less i eat like the old way.my pain in my hip has significantly been reduced. My next…[Read more]
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Sheila D replied to the topic Esbriet and coughing in the forum Esbriet (Pirfenidone) 7 months, 1 week ago
Yes Esbriet has similar side effects like cold etc. I take an over counter antihistamine that helps
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Sheila D became a registered member 7 months, 2 weeks ago