Hans M. Fink

• How long after your diagnosis of PF/IPF did you start taking Ofev?
Immdiatly. Actually my Respirologist left the choice to me & I chose OFEV.

• When you started Ofev, had your Doctor shared with you whether your PF/IPF was mild, moderate or severe?
My IPF was moderate.

• When being prescribed Ofev did you ask or did your Doctor offer to expla…[Read more]

Hello Robert,
I change the Oxygen flow rates “Before” getting up for bathroom visit. Then lower it when back at sitting rest.
Before doing any kind of movement or exertion, I always check the Oxygen saturation before actually proceeding. This all takes time but find that it has to be done to be safe.
Resting, my settings are usually 6-8 liters but…[Read more]

Hi Marilyn Cellucci,
I have the same weight loss issue as you. Also, I would not accept the view of your Pulmonologist but am convinced that the weight loss is directly related to the OFEV medications. Have not yet asked a nutritionist for advice but will soon.
Sincerely
Hans Fink (in Canada)

Hello Charlene,
I appreciate your comments very much.
I think that a decision to have procedures done such as stem cell therapy, which are still largely unproven may have something to do with age & attitude of an individual IPF patient.
When you are younger, such as yourself it is different. As for me, I’m 86 years old & figure “what do I have to…[Read more]

Hello Allen,
I am curious how the stem Cell therapy procedure for the lungs was performed?
Can you provide a brief description?
Thanks,
Hans

Hello Charlene & Rune,
I am also seriously considering having stem cell treatment done for myself. Unfortunately clinics in Canada have so far resisted in offering it to us IPF patients.
I checked with a clinic in Michigan, USA & they would do it.
But since the pandemic struck us, the borders were closed. Now that I could travel to the USA, I am…[Read more]

Hello Rebecca,
Thank you for the information on Systemic Enzymes.
I have not tried it yet but am very interested I getting all the ingredients.
Because I am currently on Ofev whose side-effects caused a lot of weight loss, decided to stop ECGC.
Where would one usually find all the items you describe?

Sincerely,
Hans Fink (Windsor, Canada)