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Hans M. Fink replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 weeks, 5 days ago
• How long after your diagnosis of PF/IPF did you start taking Ofev?
Immdiatly. Actually my Respirologist left the choice to me & I chose OFEV.• When you started Ofev, had your Doctor shared with you whether your PF/IPF was mild, moderate or severe?
My IPF was moderate.• When being prescribed Ofev did you ask or did your Doctor offer to expla…[Read more]
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Hans M. Fink replied to the topic Oxygen Delivery System when needs go up in the forum Diagnosis Information and General Questions 1 month, 1 week ago
Hello Robert,
I change the Oxygen flow rates “Before” getting up for bathroom visit. Then lower it when back at sitting rest.
Before doing any kind of movement or exertion, I always check the Oxygen saturation before actually proceeding. This all takes time but find that it has to be done to be safe.
Resting, my settings are usually 6-8 liters but…[Read more] -
Hans M. Fink posted a new activity comment 1 year, 5 months ago
I have used this forum for a long time now. It is always helpful to hear other IPF patients thoughts.
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Hans M. Fink replied to the topic Ofev UK in the forum Ofev (Nintedanib) 1 year, 6 months ago
Hi Marilyn Cellucci,
I have the same weight loss issue as you. Also, I would not accept the view of your Pulmonologist but am convinced that the weight loss is directly related to the OFEV medications. Have not yet asked a nutritionist for advice but will soon.
Sincerely
Hans Fink (in Canada) -
Hans M. Fink replied to the topic Stem Cell Procedure for IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
Hello Charlene,
I appreciate your comments very much.
I think that a decision to have procedures done such as stem cell therapy, which are still largely unproven may have something to do with age & attitude of an individual IPF patient.
When you are younger, such as yourself it is different. As for me, I’m 86 years old & figure “what do I have to…[Read more] -
Hans M. Fink replied to the topic Stem Cell Procedure for IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
Hello Allen,
I am curious how the stem Cell therapy procedure for the lungs was performed?
Can you provide a brief description?
Thanks,
Hans -
Hans M. Fink replied to the topic Stem Cell Procedure for IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago
Hello Charlene & Rune,
I am also seriously considering having stem cell treatment done for myself. Unfortunately clinics in Canada have so far resisted in offering it to us IPF patients.
I checked with a clinic in Michigan, USA & they would do it.
But since the pandemic struck us, the borders were closed. Now that I could travel to the USA, I am…[Read more] -
Hans M. Fink replied to the topic Systemic Enzymes, with or without prescription anti-fibrotics in the forum Diagnosis Information and General Questions 1 year, 7 months ago
Hello Rebecca,
Thank you for the information on Systemic Enzymes.
I have not tried it yet but am very interested I getting all the ingredients.
Because I am currently on Ofev whose side-effects caused a lot of weight loss, decided to stop ECGC.
Where would one usually find all the items you describe?Sincerely,
Hans Fink (Windsor, Canada) -
Hans M. Fink became a registered member 2 years, 4 months ago
Yes very