• Darlene Cochran posted an update 9 months, 3 weeks ago

    In reading the question about what a newly diagnosed person should have for tools to help adjust, I suggest the following:
    1, The Friends and Family information card from the Pulmonary Fibrosis Foundation. Short, concise and accurate.

    2. A friend who can listen and listen as you talk through it.

    3. A support group that gives you contact with people who are on your journey.

    4. Curiosity that compels you to seek information.

    5 Connection with the Pulmonary Fibrosis Foundation to be sure you have accurate and up to date information.

    6. Faith and an openness to the new life you will now be living.

    Everyone will have a unique journey, the list I have given are things that help you navigate the way with some measure of confidence. Just remember not to let you illness take the joy and good things out of you. What you loved and were is still apart of you. What you will become will include opportunities for love and joy as well. Remember that love and joy are more important than the negatives. For me God is my answer/guide. Yours may be different but find your answer/guide to help you on the way. The first and last thing would be a Pulmonologist who understands you and your disease. Not everyone does.

    • Hi Darlene, these are great responses to the post but they got posted as a status update somehow.. would you mind copying your message into the Toolkit thread? Click here and scroll to the bottom, paste in the text box there, and click submit. Thanks! I’d hate for people to miss out on your thoughtful responses. 🙂

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