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  • Cooper P Abrams III

    Member
    May 25, 2018 at 9:27 am in reply to: Has Pulmonary Fibrosis Changed Your Appetite?

    My appetite has not changed, nor have I lost weight.  Diagnosed with IPF in February.  It took three and half months to get thet dianoses.   I am not on ifp medication, and coming off predizone completely in two more weeks (5mg).  I was on 40mg initially staring in October.

    I am on oygen part of the time, mostly when I am active and at night.

    I cannot understand why I feel shortness of breath when my oxygen is at 93 to 97.  Sometimes even when I am using oxygen.

    Initially had blood clot in right lung and a bacterial infection, plus interstical lung disease. I am feeling better now and steroid withdrawal symptoms are lessening.  I am fighting this.

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