My appetite has not changed, nor have I lost weight. Diagnosed with IPF in February. It took three and half months to get thet dianoses. I am not on ifp medication, and coming off predizone completely in two more weeks (5mg). I was on 40mg initially staring in October.
I am on oygen part of the time, mostly when I am active and at night.
I cannot understand why I feel shortness of breath when my oxygen is at 93 to 97. Sometimes even when I am using oxygen.
Initially had blood clot in right lung and a bacterial infection, plus interstical lung disease. I am feeling better now and steroid withdrawal symptoms are lessening. I am fighting this.