Biography

Name

Linda
Nickname

cpfeln
Last Name

Norberg
Year of Birth

02/10/1954
Gender

Female
Location

Nevada
Relationship

Patient
Short Bio

Was diagnosed about 6 months ago with PF. After my last CT my diagnosis was updated to CPFE (combined pulmonary fibrosis with emphysema. Fibrosis in lower lungs and emphysema in upper lungs. Terrified of the new diagnosis. I am on oxygen 24/7 because my o2 level drops into the low 80s with any activity. With oxygen I am in mid 90s. I am also on Trelegy which helps a lot. Prognosis is not great for this combination. Looking to see if there are other long COVID CPFE people. This all started after COVID 3 times. I had all the COVID shots and booster shots. My first COVID was before doctors knew what it was.

 
Type of Diagnosis

PF of known aetiology
Treatment / Medical Facility

oxygen 24/7, Trelegy ihaled steroid, Prednisone for flare ups
Current medication regimen

Same as above
Lung transplantation status

ineligible
Supplemental Oxygen

yes
Are you currently taking an anti-fibrotic medication?

no
How did you find us?

PF News Website
How long have you or the person that you are caring for had PF?

8 months
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