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Judy

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@craftyone

@charlene-marshall I have a question. Here in Florida we are supposed to wear face masks in public buildings. I go out very seldom and have worn a mask. I called my oxygen company to see if they had received new orders from my pulmonologist yet as we have found sometimes the faxes don’t go through. Back to question she told me that I was better […] View
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    Judy posted an update 2 years, 8 months ago

    @charlene-marshall I have a question. Here in Florida we are supposed to wear face masks in public buildings. I go out very seldom and have worn a mask. I called my oxygen company to see if they had received new orders from my pulmonologist yet as we have found sometimes the faxes don’t go through. Back to question she told me that I was better…[Read more]

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    Judy replied to the topic The Frequency of Changing Your Nasal Cannula in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 10 months ago

    Entered before finishing comment. Anyhow there was a mention regarding dry nose, which is irritating to say the least. Shortly after I started o2 24/7 i recognized that needed something but knew I couldn’t use Vaseline. A friend of my daughter has a young very ill son who has been on o2 most of his life. When asked she recommended Rhinase a…[Read more]

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    Judy replied to the topic Changing Furnace Filters & Spring Cleaning For PF Patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 11 months ago

    `living in Florida I change tge heat/air conditioning filter at least every 2 months and usually every month. The system works better and is much better for my lubgs. I also have air purifiers running 24/7 and change that filter as called for.

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    Judy replied to the topic PSA Safe Grocery Shopping in COVID-19 Pandemic – UPDATED!!! – YouTube in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 12 months ago

    There are so many seniors in our area that stores are really busy during that tine. My children don’t want me to go out, and I am lucky enough that they can get what I need. Must admit that I miss going to the store as staying is boring and I like to shop

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    Judy replied to the topic Hobbies for COVID-19 Quarantine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 12 months ago

    I have been sewing, reading, computer games and Other crafts to keep busy. Take each day as it comes. Not used to staying in.

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    Judy replied to the topic Definitive test for diagnosis? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years ago

    I was diagnosed about a year ago, but not conclusively. I have been on o2 since last year as my levels drop without it. I was on prednizone 10 mg. I was taken off that in January of this year to do testing see what the changes were with ct and pft.. Put on ofev but couldn’t tolerate the side effects. I was going to have lung biopsy, but tests…[Read more]

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    Judy replied to the topic Book Club in the forum Hobbies & Projects 3 years, 1 month ago

    I have been an avid reader since i waa a child. I love different genres depending on mymood. My favorite author is J D Robb. I have been reading her for years. I also enjoy Lee Child, Michael Connelly, Karen Kingsbury among others. Since I have been so fatigued of late I have been reading alot.

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    Judy replied to the topic Friend Requests in the forum Using Our Forums 3 years, 2 months ago

    I too received the friend request and it went nowhere. Hlad to know about the spammers and that you are taking care of them. Really appreciate your work. I hadn’t thought about a possible spammer when I received I now know to delete. Many thanks

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    Judy replied to the topic Do you take OFEV? Take our poll! in the forum Polls & Quizzes 3 years, 2 months ago

    Just started ofev this week. Some slight nausea so far. To soon to give much feedback.

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    Judy replied to the topic Chest cramps in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 2 months ago

    Thank you for talking about the he cramping. I too suffer from the chest cramping also cramping in my legs and feet. I had asked my dr regarding them. Didn’t know if it was related to my fibrosis or not. One dr thought it was a bruised rib. After reading the above i feel better about them. At least have a reason. For my chest area I usually just…[Read more]

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    Judy posted an update 3 years, 4 months ago

    I was writing re the inhalers and their lack of working. .but I wondered about stuffiness, I live in Florida and it is humid. Additionally does anyone have a problem that I like to drool I’m my. I do have post nasal drip and it sometimes bags me.

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 4 months ago

      Hi Judy,

      Thanks for writing, though so sorry to hear that you’re dealing with congestion/stuffiness. My first question is whether or not you might be dealing with some allergies (which can develop in people from year-to-year, so even if you’ve never had them before, you may have some this year?) especially if you’re dealing with post nasal drip…[Read more]

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    Judy replied to the topic Periodic Muscle Cramps & Pain Since IPF Diagnosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 7 months ago

    I am new to having pulmonary fibrosis. Been on oxygen for about 3 months. Before oxygen i was a couch potato. Now i can do things again. Prior to oxygen i had cramping on rib cage. I also have been experiencing leg and foot cramps periodically. After starting the oxygen, the rib cramping stopped until this week, when i started feeling pain…[Read more]

  • Profile picture of Judy

    Judy became a registered member 3 years, 9 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 9 months ago

      Thanks for joining the PF forums Judy. Welcome!

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