Entered before finishing comment. Anyhow there was a mention regarding dry nose, which is irritating to say the least. Shortly after I started o2 24/7 i recognized that needed something but knew I couldn’t use Vaseline. A friend of my daughter has a young very ill son who has been on o2 most of his life. When asked she recommended Rhinase… Read more

`living in Florida I change tge heat/air conditioning filter at least every 2 months and usually every month. The system works better and is much better for my lubgs. I also have air purifiers running 24/7 and change that filter as called for.

There are so many seniors in our area that stores are really busy during that tine. My children don’t want me to go out, and I am lucky enough that they can get what I need. Must admit that I miss going to the store as staying is boring and I like to shop

I have been sewing, reading, computer games and Other crafts to keep busy. Take each day as it comes. Not used to staying in.

I was diagnosed about a year ago, but not conclusively. I have been on o2 since last year as my levels drop without it. I was on prednizone 10 mg. I was taken off that in January of this year to do testing see what the changes were with ct and pft.. Put on ofev but couldn’t tolerate the side effects. I was going to have lung biopsy, but… Read more

I have been an avid reader since i waa a child. I love different genres depending on mymood. My favorite author is J D Robb. I have been reading her for years. I also enjoy Lee Child, Michael Connelly, Karen Kingsbury among others. Since I have been so fatigued of late I have been reading alot.

I too received the friend request and it went nowhere. Hlad to know about the spammers and that you are taking care of them. Really appreciate your work. I hadn’t thought about a possible spammer when I received I now know to delete. Many thanks

Just started ofev this week. Some slight nausea so far. To soon to give much feedback.

Thank you for talking about the he cramping. I too suffer from the chest cramping also cramping in my legs and feet. I had asked my dr regarding them. Didn’t know if it was related to my fibrosis or not. One dr thought it was a bruised rib. After reading the above i feel better about them. At least have a reason. For my chest area I usually… Read more

I am new to having pulmonary fibrosis. Been on oxygen for about 3 months. Before oxygen i was a couch potato. Now i can do things again. Prior to oxygen i had cramping on rib cage. I also have been experiencing leg and foot cramps periodically. After starting the oxygen, the rib cramping stopped until this week, when i started feeling… Read more