Willie X Shapiri
@Willie X Shapiri
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Joined Jul 2021 •
Active 2 years ago
Biography
| Name | Willie |
| Nickname | Willie X Shapiri |
| Last Name | X Shapiri |
| Year of Birth | 06/08/1947 |
| Gender | Female |
| Location | New York |
| Relationship | Patient |
| Short Bio | Was diagnosed after 2013 with Sjogren’s and then around 2016 pulmonary fibrosis. My mother had it. When she passed away from it, I was told it was not hereditary only to find out later that it is. |
| Type of Diagnosis | familial/genetic PF |
| Treatment / Medical Facility | Medication, x-rays, CT Scans/New York Langone |
| Current medication regimen | CellCept 500 mgs. Ea pill/ 3 pills AM and 3PM, vitamins |
| Lung transplantation status | ineligible |
| Supplemental Oxygen | no |
| Best advice for PF symptom management | Take medication, lots of rest because I constantly struggle with fatigue, Flovent |
| Are you currently taking an anti-fibrotic medication? | no |
| How did you find us? | PF News Website |
| How long have you or the person that you are caring for had PF? | Since about 2016 |
| Privacy Policy and Terms of Use | I agree |