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  • Darlene Walmsley posted a new activity comment 1 month, 2 weeks ago

    Dexamethasone is now being used in the treatment of covide 19 to boost immune system.

  • I don’t know why I have so much trouble posting anything if this forum…Here goes again…Just discovered I have lost 1/3 of my lung function with PF over an 8 month period. I am 83…decided not to go on either of the drugs but am taking green tea extract also dexamethasone started with 4mg for month, 2mg month and now GP going to re-access me…[Read more]

    • Hello Darlene, your post came in fine. I am sorry to hear about the decline in lung function. I can not help you with any of the treatments you have mentioned but I hope other members will chime in. Take care, Mark.

  • Darlene Walmsley posted a new activity comment 2 months, 3 weeks ago

    Thanks for your reply Charlene…no answers so far. For those of us trying green tea extract…any side effects? My hands and feet seem to be cramping alot…just asking! Only on 300mg…600mg caused bowel problems.

  • Darlene Walmsley posted an update 3 months ago

    couple of things….I’ve just started the green tea extract….see how that works for slowing progression and doctor now has me on oxygen as needed. I have a monitor and am walking 6 minutes, doing a reading and keeping a log for my doctor. The 6 min walk is what they do at breathing lab in hospital. I am on dexamethasone 4mg for a month and now…[Read more]

    • Hi Darlene,

      Thanks so much for sharing, let us know how the green tea extract goes. I continue to be in conversation with the investigators of the New England Journal of Medicine (NEJM) to see how we may be able to do a study with a larger sample size, examining the benefit of the extract. Stay tuned!

      Glad you’re able to monitor at home and are…[Read more]

    • Thanks for your reply Charlene…no answers so far. For those of us trying green tea extract…any side effects? My hands and feet seem to be cramping alot…just asking! Only on 300mg…600mg caused bowel problems.

  • Dr decided NOT to put me on Esbriet but prescribed dexamethasone for 2 months and then prednisone…Anyone else gone this route to reduce inflamation and shortness of breath?

  • tried giving update on Ofev prices here in BC $800 and was told used inappropriate word. Huh?

    • Hello Darlene, I will have tech to check into it. This is the first I have heard of something like this happening. Sorry you had this experience. Mark

  • Darlene Walmsley posted a new activity comment 4 months, 3 weeks ago

    Hi all. Thanks for your posts. Took me awhile to figure out how to post and log in, kept getting rejected. Hopefully this 82 year old brain will retain info required.
    I was stable until the virus hit me and since then suffer from shortness of breath, lightheaded etc. and voice, sound like a fog horn. My GP popped by and he said once I get on Ofev…[Read more]

  • I’m new and trying to post and find my way around. Got hit with the Christmas virus that raged through S. Surrey White Rock and wondering if anyone else got it? Thanks Mark nice to meet you. I see there is a Canadian and US forum…Can we post on both sites

    • Hello Darlene, there are individuals from all over the world on our forum. One post is all you need for your comments to get out. Mark

    • Hi Darlene,

      Welcome to the forums, we’re glad you’ve found us – this is a very unique and supportive place, the people are so wonderful. Sorry to hear you ended up sick at Christmas time, it’s terrible to be unwell isn’t it? I ended up sick in November with both pneumonia and influenza, it was awful. I hope you recovered okay from it? There is…[Read more]

    • Hi all. Thanks for your posts. Took me awhile to figure out how to post and log in, kept getting rejected. Hopefully this 82 year old brain will retain info required.
      I was stable until the virus hit me and since then suffer from shortness of breath, lightheaded etc. and voice, sound like a fog horn. My GP popped by and he said once I get on Ofev…[Read more]

  • Darlene Walmsley became a registered member 4 months, 3 weeks ago

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