

Daryl Long
Biography
Name | Daryl Long |
Nickname | daryl-long |
Year of Birth | 1948 |
Gender | Male |
Location | Groveland, MA |
Relationship | Patient |
Short Bio | I had lived a relatively charmed life for 70 years, and was living a very active retirement. I was diagnosed with hypersensitivity pneumonitis two years ago, during a hospitalization for pneumonia. After discharge, I needed 2L of oxygen for exercise, and I have a very painful cough, without medication. A year later, after another round of pneumonia, I am now on 3L at rest, increasing to 8L when exercise. I’m currently trying to qualify for a transplant. |
Type of Diagnosis | PF of known aetiology |
Treatment / Medical Facility | BIDMC IN Boston |
Current medication regimen | Gabapentin (cough), prednizine, CellCept |
Lung transplantation status | currently in evaluation process |
Supplemental Oxygen | yes |
Best advice for PF symptom management | Get advice from multiple and varied medical sources. Cough relief (gabapentin) was prescribed by an ENT. |
Are you currently taking an anti-fibrotic medication? | yes |
How did you find us? | PF News Website |
How long have you or the person that you are caring for had PF? | 2 years |
Privacy Policy and Terms of Use | I agree |