Biography

Name

Daryl Long

Nickname

daryl-long

Year of Birth

1948

Gender

Male

Location

Groveland, MA

Relationship

Patient

Short Bio

I had lived a relatively charmed life for 70 years, and was living a very active retirement. I was diagnosed with hypersensitivity pneumonitis two years ago, during a hospitalization for pneumonia.   After discharge, I needed 2L of oxygen for exercise, and I have a very painful cough, without medication.  A year later, after another round of pneumonia, I am now on 3L at rest, increasing to 8L when exercise.   I’m currently trying to qualify for a transplant.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

BIDMC IN Boston

Current medication regimen

Gabapentin (cough), prednizine, CellCept

Lung transplantation status

currently in evaluation process

Supplemental Oxygen

yes

Best advice for PF symptom management

Get advice from multiple and varied medical sources.   Cough relief (gabapentin) was prescribed by an ENT.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

2 years

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