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Diane B replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 3 weeks ago
Oh boy…thanks for sharing that. I had my husband start taking the serrapeptase , I think, back in 2016. I think I had been taking it even before then, but I forget what for. I think he takes it in the a.m. with his other meds. I keep hearing of cough and mucus and until just recently he has never had mucus issues…a cough sometimes but no…[Read more]
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Diane B replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 3 weeks ago
I purchase serra for my husband. I believe it is Doctors Best. I am thinking he goes back and forth between 120,000 and 240,000. Im not sure. He takes both OFEV and serra . Has been on serra for several yrs. now. OFEV maybe a yr or two.
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Diane B replied to the topic Eliminating Immunosuppressants for a Transplant Patient in the forum Pre/Post Lung Transplant 10 months, 3 weeks ago
Do most transplant patients end up with other organ failure or cancer from all of the drugs?
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Diane B replied to the topic Pamrevlumab? in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 3 weeks ago
I thought that was still in trials.
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Diane B's profile was updated 12 months ago
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Diane B replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 4 months ago
My niece who has a genetic condition similar to cystic fibrosis, who gets pneumonia a lot and can’t fight infections because her cilia do not beat properly…was not vaccinated. She had bacterial pneumonia plus covid, recently. We thought “oh boy…this is not going to end well” Around day 6 she got the monoclonal antibodies infusion from her…[Read more]
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Diane B replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 4 months ago
Are you referring to monoclonal anti-bodies infusion?
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Diane B replied to the topic Stem Cell Procedure for IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
Please keep us updated!
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Diane B replied to the topic Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) 1 year, 5 months ago
I am so happy for you. We are Christians and my husband has been prayed over. I had another lady I met through a group who wanted to pray over him at a church but Covid was surging and he did not feel comfortable going. I keep asking God to heal my husband of this. He was diagnosed , I believe Dec. of 2016. They misdiagnosed him and I aske…[Read more]
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Diane B became a registered member 2 years, 4 months ago