Debbi Rummery

Hi Mal,

Mareeba Gold pineapples are the best hahaha. Not a big fan of mango though.

Deb

Hi Malcolm,

Cost of Ofev in Aust is $40.20.

Regarding your diet, I was part of a Named Patient Program because Ofev hadn’t been approved in Australia when I started on it. The drug company produced a booklet with helpful guidelines. The most important was a LOW fibre diet and try for 6 smaller meals each day. I started on this but have now gone…[Read more]

Hi Mal, ( @mal-com )

My apologies. I did reply to you but it seems to have disappeared.

Cairns in May is the best time to be here. Can we meet up while you’re here or are you staying in Port Douglas? My e-mail address is [email protected]

Regards, Deb

Hi Steve,

I will admit to a bit of stalking before joining in and I quickly realised this was the place for me to be. I have wonderful support from my husband, children and sister but I think you sometimes need to speak to someone who is going through it too. I’m reading some of the back topics and can relate to a lot of them.

I hope you get…[Read more]

@Steve

Hi Steve,

Thanks for the info. I’ve read quite a few of your posts and will look into it a bit more.

At the moment I just walk on my treadmill for 20 mins daily in air-conditioned comfort because it’s a bit too hot to walk outside. It’s our summer and we’ve had quite high temps and high humidity.

I did the Pulmonary Rehabilitaion course…[Read more]

Hi everyone.

I’m 62 and I live in Cairns, Qld, Australia – right on the Great Barrier Reef. I was diagnosed with IPF in October 2015. I started Ofev in December 2015 (one of the earliest Australians to start the medication) so I’m a little over 3 years now. I’ve had a few ups and downs with diarrhoea and mild nausea but have finally settled into…[Read more]