-
David Collard replied to the topic Lung Transplant Considerations. in the forum Pre/Post Lung Transplant 3 years, 12 months ago
Does any one have statistics on the number of successful lung transplants versus the number of failures or rejections? I have heard of complications with lung transplants. Is there any data on the length of time that extends an IFP life?
-
David Collard replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 4 years, 3 months ago
my question is “ending Esbriet” rather than starting it…. I have been on |Esbriet for several years and it definitely has slowed down the progression of the scaring in my IPF lungs. However the last breathing test identified that esbriet was no longer slowing down the progression and the government medical plan was no longer going to support…[Read more]
-
David Collard replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 4 years, 3 months ago
hi to all Esbriet users. my concern is not starting esbriet, my concern is what happens when you no longer can take esbriet because it is no longer slowing down the rate of IPF.
-
David Collard started the topic how long can you take Esbriet? in the forum Esbriet (Pirfenidone) 4 years, 3 months ago
how long can you continue to take esbriet? Is there a limit to time frame when esbiet no longer slows the scaring of the lungs and you are taken off of esbriet?
-
David Collard replied to the topic How Does Fatigue Get in Your Way? in the forum Young Adults Living with Pulmonary Fibrosis (40 & Under) 4 years, 3 months ago
Have you ever tried increasing your oxygen levels?
I find that if I turn the oxygen levels up it helps with moving around
i usually am at 2.5 to 3 when sitting
If I have to get up and walk I turn my oxygen levels up to 4
this helps
Dave
-
David Collard replied to the topic Portable oxygen in the forum Diagnosis Information and General Questions 4 years, 6 months ago
great web site Robert — BUT it is all for pulse POC…. unfortunately I require continuous pulse, and can not use or manage Pulse devices. so does any one know about continuous feed devices other than canisters?
-
David Collard replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis Information and General Questions 4 years, 6 months ago
just a quick follow up to my post on what my lung specialist is saying about prednisone — his concern with prednisone is the impact that it has on other organs and parts of the body; and that more IPF patients have died from prednisone than those that have not taken prednisone. We all know that IPS is a critical disease without a cure and…[Read more]
-
David Collard replied to the topic Portable oxygen in the forum Diagnosis Information and General Questions 4 years, 6 months ago
Thank you David Naumann as I too thought that there was confusion on this post, or is it me that is confused as to POC versus the oxygen concentrator/transfill system which I use either directly with a 50 ft hose or with the tanks that it refills. I gather that a POC unit does not deliver a continuous flow of oxygen, or is there such a unit? The…[Read more]
-
David Collard replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis Information and General Questions 4 years, 6 months ago
just a message from my lung specialist he does not prescribe prednisone because of the many adverse dangers of its use. Before starting prednisone I would suggest that you get a second opinion.
Dave Collard from Ottawa Canada
[email protected] -
David Collard changed their profile picture 4 years, 7 months ago
-
David Collard replied to the topic Has anyone else seen a recent jump in the price of Esbriet? in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 8 months ago
Hi Charlene, I told you I would respond and let you know what my Dr. said when I asked him if I could change to the ‘super pill’ as he called it – one pill containing the same power/potency as the 3 pills of Esbriet. He said he did not know if it was available in Canada yet, so I suppose I’ll have to wait until he finds out and gets me on to i…[Read more]
-
David Collard replied to the topic Networking with other Canadian patients in the forum Canadians Living with Pulmonary Fibrosis 4 years, 11 months ago
Thanks for your reply Charlene and your notes about supplimentary Oxygen – here are the responses to your questions:
As to the beauty of the West Coast – I was born and raised in Vancouver, a graduate of UBC and two of my children are living in Victoria. I was hoping to visit with them this summer, however now being on Oxygen, my travel days a…[Read more]
-
David Collard replied to the topic Networking with other Canadian patients in the forum Canadians Living with Pulmonary Fibrosis 4 years, 11 months ago
- What’s your name? = David Collard
- Where in Canada do you live? = Kemptville Ont,
- What treatment facility are you associated with? = I am being treated by Dr. Krishna Sharma
- What kind of PF do you have, and how long have you had it? = I was diagnosed with IPF in March of 2013
- Share an interesting fact about yourself = after 5 years on…
-
David Collard replied to the topic Have you ever used liquid oxygen? in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 11 months ago
It would be of help to know the differences between “liquid oxygen” and oxygen gas. Who supplies liquid oxygen and what are the capacities of the tanks as compared with oxygen gas. What are the costs? Can you go further or do the liquid oxygen tanks last longer and at what rates of use?
-
David Collard became a registered member 4 years, 11 months ago
Welcome to the PF forums David, thanks for joining us!