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denise anton replied to the topic Mental Health & Chronic Illness Advice in the forum Living with Pulmonary Fibrosis: 50+ 9 months, 3 weeks ago
Beautifully stated! Thank you and may God bless us all. Find strength in His Divine Mercy! 🙏🏻❤️🙏🏻
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denise anton replied to the topic Need better diagnostic info in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months ago
Dear Bob, I can so relate to your frustration. I got ver tired hearing “everyone is different” not helpful when you are trying to assess where you are. You are one the right track. Ask lots of questions, research, and mainly, follow how you are feeling. I have had IPF for about 3 yrs, diagnosed under 2 yrs ago. I find Ofev has helped me a lot.…[Read more]
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denise anton replied to the topic Top 4 Words You'd Use to Describe IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months, 1 week ago
Sad, challenging, frightening, & fatal.
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denise anton replied to the topic Wrestling with the End Stage of Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 11 months, 2 weeks ago
AMEN Paul. May God bless us all!
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denise anton replied to the topic Do you take OFEV? Take our poll! in the forum Polls & Quizzes 1 year ago
Yes
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denise anton replied to the topic "Breathless" Transplant News in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 1 month ago
Dear Russell,
I have the same diagnosis timeline. I have extreme retching problems w Ofev, but don’t do well w pills, so I have not switched to Esp’t.. I will keep you in my prayers. It is a hard trial we have, but we must persevere & trust in Our Lord’s great love and care. Stay strong and brave!
your IPF sister, denise
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denise anton replied to the topic Life span in the forum Diagnosis Information and General Questions 2 years, 1 month ago
Sorry about your diagnosis Pam. I too have asked the question, but can not get anyone to provide realistic statistics, which must exist somewhere. “Everyone is different”is true, but there must be some information that will help those with IPF evaluate how to plan their future. Rather than discourage me, it would help me feel informed and…[Read more]
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denise anton posted a new activity comment 2 years, 1 month ago
Thank you Mark for your compassion, support, and dedication to help others with IPF!
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denise anton replied to the topic Head aches in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 3 months ago
thank you both!!
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denise anton replied to the topic Head aches in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 4 months ago
I just spent the morning chatting with an Ofev nurse to find out about headaches. Same response “everyone has different reactions” It is somewhat reassuring to see I am not alone, though I am sorry for all of us! Not sure if it is about sinus, food, other meds., or combo. I was doing well with 100mgs, after 150mgs did me in. New to IPF at 65.
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denise anton became a registered member 2 years, 5 months ago
Hello Denise, we are delighted to have you as a member of the pf forum. Welcome!
Thank you Mark for your compassion, support, and dedication to help others with IPF!