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Denis Ryan

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@denisryan

My query; What is the average yearly life after having a lung transplant because of IPF? Any information would be very appreciated. View
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  • Profile picture of Denis Ryan

    Denis Ryan replied to the topic Why do IPF patients lose weight and how to help in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months ago

    Hi Janet, I thought you w
    were describing me there in your letter. I have IPF since early 2019. Am on 100 mg OFEV twice daily but little or no side effects. Lost 140 lbs over 2 years. Food a battle, no appetite, try to eat 5 small snacks daily including food supplements such as Fortisip. Receiving hospital dietitions advice but still not putting…[Read more]

  • Profile picture of Denis Ryan

    Denis Ryan replied to the topic Nasal Congestion and Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago

    Hi Everyone,
    I recently attended a Zoom conference on Lung Fibrosis here in Ireland. On session was given by a consultant from the University of Essex in the U.K. I asked her “Can Reflux/GERD be a cause of IPF”. She responded –
    “This has been the cause of much discussion – it is generally thought that GERD exacerbates rather than causes IPF but…[Read more]

  • Profile picture of Denis Ryan

    Denis Ryan replied to the topic Looking for answers in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 6 months ago

    Hi All,
    I am somewhat confused.
    I am a user of OFEV for IPF with 100 mg capsules twice daily. I was reading the Boehringer Ingelheim package leaflet that comes with the capsules and I noticed that under the item 1, the phrase “OFEV helps to reduce scarring and stiffening of the lungs”, mentioned under the heading “What OFEV is and what it is used…[Read more]

  • Profile picture of Denis Ryan

    Denis Ryan replied to the topic Has OFEV been effective in slowing your progression? in the forum Ofev (Nintedanib) 1 year, 8 months ago

    Hi Don, I was diagnosed with IPF (via X-Ray and CT scan) in early 2019. I take 100 mg X2 daily of OFEV and can tolerate it fairly well. I’m not on oxygen. My Consultant says I am stable currently re. FVC and DLCO. Last night thinking about this disease, I felt I should find out what are classed as reasonable ranges for measuring both the FVC and…[Read more]

  • Profile picture of Denis Ryan

    Denis Ryan replied to the topic New to IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 9 months ago

    Thanks Christie for clarifying the question of the 2 years for me. I’m still learning about this terrible disease.

  • Profile picture of Denis Ryan

    Denis Ryan replied to the topic New to IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 10 months ago

    Hi Christie, I have the IPF for 3 years now. I’m 80 years old. My consultant tells me (Dublin, Ireland) that I will not get a place on the transplant listing as I am over 70 years of age (maybe due to lack of donors). I am in good health & taking Ofev @ 100 mgs twice per day and have little of the side affects of same. I take rehab. exercises 3…[Read more]

  • Profile picture of Denis Ryan

    Denis Ryan posted a new activity comment 2 years, 8 months ago

    Hi Mark, only diagnosed last year with IPF ,so am interested in researching as much as possible. denis

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    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 8 months ago

      Hello Denis, please peruse the forums and associated topics. You will find information that you will find useful. If you have any questions, please ask. Take care, Mark

  • Profile picture of Denis Ryan

    Denis Ryan posted an update 2 years, 8 months ago

    My query; What is the average yearly life after having a lung transplant because of IPF? Any information would be very appreciated.

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 8 months ago

      Hello Denis, I had a single lung transplant in December 2015. I just got back from performing my spirometry test. I am still improving and all my blood work is positive. The length of life differs for everyone. There many things to take into consideration. I am approaching 5 years and feel healthy. There some things I can’t do because I am b…[Read more]

  • Profile picture of Denis Ryan

    Denis Ryan became a registered member 3 years ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years ago

      Hello Denis, welcome and thank you for joining your pulmonary fibrosis forum.

      • Profile picture of Denis Ryan
        Denis Ryan replied 2 years, 8 months ago

        Hi Mark, only diagnosed last year with IPF ,so am interested in researching as much as possible. denis

        • Profile picture of Mark Koziol
          Mark Koziol replied 2 years, 8 months ago

          Hello Denis, please peruse the forums and associated topics. You will find information that you will find useful. If you have any questions, please ask. Take care, Mark

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