Denis Ryan

Hi Janet, I thought you w
were describing me there in your letter. I have IPF since early 2019. Am on 100 mg OFEV twice daily but little or no side effects. Lost 140 lbs over 2 years. Food a battle, no appetite, try to eat 5 small snacks daily including food supplements such as Fortisip. Receiving hospital dietitions advice but still not putting…[Read more]

Hi Everyone,
I recently attended a Zoom conference on Lung Fibrosis here in Ireland. On session was given by a consultant from the University of Essex in the U.K. I asked her “Can Reflux/GERD be a cause of IPF”. She responded –
“This has been the cause of much discussion – it is generally thought that GERD exacerbates rather than causes IPF but…[Read more]

Hi All,
I am somewhat confused.
I am a user of OFEV for IPF with 100 mg capsules twice daily. I was reading the Boehringer Ingelheim package leaflet that comes with the capsules and I noticed that under the item 1, the phrase “OFEV helps to reduce scarring and stiffening of the lungs”, mentioned under the heading “What OFEV is and what it is used…[Read more]

Hi Don, I was diagnosed with IPF (via X-Ray and CT scan) in early 2019. I take 100 mg X2 daily of OFEV and can tolerate it fairly well. I’m not on oxygen. My Consultant says I am stable currently re. FVC and DLCO. Last night thinking about this disease, I felt I should find out what are classed as reasonable ranges for measuring both the FVC and…[Read more]

Thanks Christie for clarifying the question of the 2 years for me. I’m still learning about this terrible disease.

Hi Christie, I have the IPF for 3 years now. I’m 80 years old. My consultant tells me (Dublin, Ireland) that I will not get a place on the transplant listing as I am over 70 years of age (maybe due to lack of donors). I am in good health & taking Ofev @ 100 mgs twice per day and have little of the side affects of same. I take rehab. exercises 3…[Read more]