@dennisr13
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Dennis Rowe replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 1 year, 2 months ago
Holly and I were within a week of each other for our transplants at UCSF.
I experienced several exacerbations both at home and in the hospital. Thanks to my pulmonologist’s communication with UCSF, I was transferred to San Francisco to await a double lung transplant. After being there for about a month I was fortunate to receive my tra…[Read more]
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Dennis Rowe replied to the topic Depressed and need support in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 8 months ago
This reply is for all of you(except Christie-thankfully!)
I am 2 1/2 years post bilateral lung transplant, and had several exacerbations before getting my transplant at UCSF. Christie’s mother was there at the same time I was.
As someone who was very fortunate to get the necessary transplant to continue my life. I urge all of you to seek out…[Read more]
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Dennis Rowe replied to the topic when rejected for transplant in the forum Using Our Forums 1 year, 9 months ago
Christie,
We obviously were! My transplant was May 9th, 2019!
Dennis
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Dennis Rowe replied to the topic when rejected for transplant in the forum Using Our Forums 1 year, 9 months ago
I second what Christi said about UCSF!
I was 72 in 2018 when I was accepted as a transplant candidate at UCSF.
When I went for my initial evaluation meeting with their staff, two of my grown children and my wife were with me. UCSF is very cognizant of your support group, and I really feel having so many family members with me really helped with…[Read more] -
Dennis Rowe replied to the topic Third Vaccine Dose Chat Thread in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 9 months ago
I got my booster on the 24th…Arm still sore, but fatigue is fading…I’m just happy to get the booster! Wear your masks and stay safe out there!
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Dennis Rowe replied to the topic Acute Exacerbation and Cyclophosphamide in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 1 month ago
I had three exacerbations after being listed for transplant at UCSF. Two times at home, from where my wife called 911 and I was transported by paramedics to the hospital. Both times even though I was on a lot of oxygen, I still couldn’t get adequate O2 saturation. The third one occurred while I was back in the hospital. My Pulmonologist was…[Read more]
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Dennis Rowe replied to the topic COVID-19 Vaccine for Transplant Patients in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 5 months ago
As soon as UCSF gives the ok for it’s transplant patients, I’ll be there to get it!
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Dennis Rowe replied to the topic Tremors as a Side Effect of Transplant Meds in the forum Pre/Post Lung Transplant 2 years, 9 months ago
I too had tremors after my bi-lateral transplant. They were mostly prevalent in my hands, but sometimes most of my body would shake! The tremors happened quite frequently, and finally got less and less.
I got very frustrated during the lengthy stay I had in the ICU! I had a tracheotomy so the only way I could communicate was when they ha…[Read more]
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Dennis Rowe replied to the topic Acute Exacerbations of Idiopathic Pulmonary Fibrosis (IPF) in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 1 month ago
Kathleen and Mike,
As previously posted, I had a bi-lateral lung transplant in March of 2019. (72 years old)
Prior to the transplant I had 3 exasperations. The first two at home, from where I was transported to the ER. The third one came while in the hospital. My Pulmonologist contacted UCSF, where I’d already been evaluated for possible tran…[Read more]
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Dennis Rowe posted an update 3 years, 2 months ago
Charlene,
As you know, I am just past my first anniversary of a bi-lateral lung transplant. Reading your columns makes me continue to realize how lucky I am! My prayers are with you and all others waiting for the “gift of life”! Keep the faith!
Dennis -
Dennis Rowe replied to the topic The Awkwardness of Wearing A Mask In Public in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 2 months ago
Charlene,
I thank you for your reply to my post!
If you care to private message me as you go through your preparations for attaining a transplant, and post transplant recovery, feel free to do so…I will be happy to help any way I can…
Stay strong,
Dennis
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Dennis Rowe replied to the topic The Awkwardness of Wearing A Mask In Public in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 2 months ago
Hi Charlene,
i just celebrated my 1 year anniversary of my bi-lateral lung transplant!
I’ve been wearing masks in public for many months, since my release from the hospital. Initially I was very conscious of people looking/staring at me. Not so much anymore. I still sometimes mention to them I’m not contagious, and I’m only trying to protect…[Read more]
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Dennis Rowe replied to the topic Esbriet Patient Survey in the forum Esbriet (Pirfenidone) 3 years, 3 months ago
Mike,
You asked how old I was when I got my transplant. I was 72 in March of 2019, when I received my surgery, and turned 73 in November of 2019. I’m told some transplant centers are more cognizant/reluctant of your age than others? UCSF did my transplant, and I’m happy to say they were/and still are wonderful!
There was a post a short time a…[Read more]
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Dennis Rowe replied to the topic Esbriet Patient Survey in the forum Esbriet (Pirfenidone) 3 years, 4 months ago
Charlene,
I took Esbriet for about a year and a half, before my bi-lateral lung transplant. My Pulmonologist recommended it over Ofev. I had no extensive reactions while on Esbriet, except for occasional diarrhea.
I am now 11 months post op, and still gaining strength. It’s been a long recovery, which was extended because I didn’t work hard e…[Read more]
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Dennis Rowe replied to the topic Am I Too Old for A Lung Transplant? in the forum Pre/Post Lung Transplant 3 years, 6 months ago
I’m 9 months post op from my bi-lateral lung transplant at UCSF. I was 72 years old at the time. I had several major exasperations after being listed by UCSF, and after the third one I was transported to UCSF to await my transplant. I was very fortunate…Three weeks after my admission I received my new lungs! It was a pretty tough recov…[Read more]
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Dennis Rowe became a registered member 3 years, 6 months ago
Hi @dennisr13 , I am so glad to hear your one year anniversary of the transplant just occurred and that you’re feeling well. I can’t wait to report back to you when I am one year post as well! Congratulations again, it is such a wonderful gift you have received. I appreciate your prayers and all the best to you! Charlene.