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Desmond Sequeira

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@desmondmsequeira

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    Desmond Sequeira replied to the topic Any Poetry Lovers Out There? in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 days, 18 hours ago

    I liked poetry we had to learn at scool but when I came across T s Elliot in 1946 when I first read it, I did not understand it nor do I fully even now in my 92nd year but I go back time and again and find startling new layers but the mystery still remains and holds me in thrall. My recent poem shown below does not quite produce it. Just as…[Read more]

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    Desmond Sequeira replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks, 4 days ago

    I don’t know much about IPF or the treatments that are effective and have no idea why that 2-5 year life span.  I can only go on my own experiences but I’m glad that there are people around who have survived and lived well past the five years.  I live in London England where we have free health care but I rarely used it over the 62 years I’ve…[Read more]

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    Desmond Sequeira replied to the topic Sleeping with head elevated in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 7 months, 1 week ago

    Coughing, on the insistence of my wife, is what got me to see my GP who sent me to a hospital and the chest unit there diagnosed I had idiopathic pulmonary fibrosis.  In the UK with free health coverage, seemingly an endless amount of testing follows, in my case twice a year each at two different hospitals.  Now twelve years on in my 92nd year o…[Read more]

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    Desmond Sequeira replied to the topic Shameless Plug: New IPF/ILD Book! in the forum Pulmonary Fibrosis Awareness & Advocacy 1 year ago

    My pulmonary fibrosis was diagnosed in 2011 when I was already 80 and although I knew via Google that I had a life span 2 – 5 years, I did not take it too seriously.  Since then two hospitals have been checking and testing me twice a year and although there was a slow but steady deterioration, it didn’t prevent me from participating in all my ac…[Read more]

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    Desmond Sequeira posted a new activity comment 1 year, 4 months ago

    Thank you Christie. I look forward to many exchanges of ideas and solutions to what seems to be a growing malady.

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    Desmond Sequeira became a registered member 1 year, 4 months ago

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      Christie Patient replied 1 year, 4 months ago

      Welcome to the PF forums Desmond! Thanks for joining us 🙂

      • Profile picture of Desmond Sequeira
        Desmond Sequeira replied 1 year, 4 months ago

        Thank you Christie. I look forward to many exchanges of ideas and solutions to what seems to be a growing malady.

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