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Dicky Griffin

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@dickygriffin

New to the PFN forum … not sure I’ll have much to offer, but I so appreciate reading everyone’s comment and thank everyone for sharing their thoughts. View
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    Dicky Griffin replied to the topic Shameless Plug: New IPF/ILD Book! in the forum Pulmonary Fibrosis Awareness & Advocacy 6 months, 2 weeks ago

    I purchased the Kindle book today and selectively read a couple of chapters that I feared the authors would over step … they didn’t.  It seems like a good investment.   THANK YOU TO THE AUTHORS  … Since my PF-ILD diagnosis life has not been good.  I’m an old devil but was not intending to retire however my lung function has continued to slip dur…[Read more]

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    Dicky Griffin replied to the topic Prospective change of meds: OFEV to Perfenidone in the forum Join the Discussion: Welcome to all PF/IPF Patients 7 months, 1 week ago

    Metamucil twice daily helped me

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    Dicky Griffin replied to the topic Having to lose weight in the forum Pre/Post Lung Transplant 8 months, 3 weeks ago

    To combine with the BMR site Christie share (a tremendously useful site), consider a site from NIH (https://www.niddk.nih.gov/bwp) which allows you to analyze your own food intake needs relative to body weight goals you set.  The parent site addresses the “3,500” calorie target for a pound loss ([Read more]

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    Dicky Griffin replied to the topic Having to lose weight in the forum Pre/Post Lung Transplant 8 months, 3 weeks ago

    Yes Christie … I was thinking one thing and mis-typed … “I should have noted support for Christie’s recommendations”.  Your help in finding the BMR calculator is critical.  My BMR has dropped almost 200 calories associated with my weight loss since I began my quest to get in shape for a lung transplant.  The weight started coming off slower and t…[Read more]

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    Dicky Griffin replied to the topic Having to lose weight in the forum Pre/Post Lung Transplant 8 months, 4 weeks ago

    I should not have supported Christies recommendation … also very good input.  The BMR site she provided provides you with “gold” information.

    Additionally she mentioned the importance of fiber and I think she is spot on … I have upped my fiber intake sufficiently to not feel hungry and it was not that tough to find high or at least higher f…[Read more]

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      Christie Patient replied 8 months, 4 weeks ago

      Hi Dicky, you post says “I should not have..” but it sounds like you meant that you also wanted to support my recommendation but I just wanted to be sure we’re not having a miscommunication. Let me know 🙂

  • Profile picture of Dicky Griffin

    Dicky Griffin replied to the topic Having to lose weight in the forum Pre/Post Lung Transplant 8 months, 4 weeks ago

    Luciano, Russell is on point … I too am 71, 5’7” and weighted 225 in mid August …  The transplant team told me I needed to reach a BMI of 30 or below and doing the things Russell discussed I have lost 38 lbs and just tow more pounds to reach the 30 BMI.

    I too use MyFittnessPal for food tracking but also use LoseIt and have found the LoseIt a…[Read more]

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    Dicky Griffin replied to the topic Being discharged with ipf – is it normal in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 9 months ago

    It’s been a couple of months since you original post.  How is your husband doing?

  • Profile picture of Dicky Griffin

    Dicky Griffin posted a new activity comment 9 months ago

    What we’re facing is uncharted for my wife (of 51 yrs) and I. Had an extremely full and wonderful life … great family and career so fear is not the table but uncertainty and concern for the financial issues ahead weighs heavy.

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      Christie Patient replied 8 months, 4 weeks ago

      Of course, the uncertainty of what lies ahead can be hard to cope with. The financial burden of illness is no small thing either. Depends where you live, what insurance you have, etc. but it can have a big effect. Just know that it’s normal to feel stressed and concerned about these things and that there are a lot of people in this forum who are…[Read more]

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    Dicky Griffin posted an update 9 months ago

    New to the PFN forum … not sure I’ll have much to offer, but I so appreciate reading everyone’s comment and thank everyone for sharing their thoughts.

  • Profile picture of Dicky Griffin

    Dicky Griffin changed their profile picture 9 months ago

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    Dicky Griffin's profile was updated 9 months ago

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    Dicky Griffin became a registered member 9 months ago

    • Profile picture of Christie Patient
      Christie Patient replied 9 months ago

      Welcome to the PF forums Dicky, thanks for joining us!

      • Profile picture of Dicky Griffin
        Dicky Griffin replied 9 months ago

        What we’re facing is uncharted for my wife (of 51 yrs) and I. Had an extremely full and wonderful life … great family and career so fear is not the table but uncertainty and concern for the financial issues ahead weighs heavy.

        • Profile picture of Christie Patient
          Christie Patient replied 8 months, 4 weeks ago

          Of course, the uncertainty of what lies ahead can be hard to cope with. The financial burden of illness is no small thing either. Depends where you live, what insurance you have, etc. but it can have a big effect. Just know that it’s normal to feel stressed and concerned about these things and that there are a lot of people in this forum who are…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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