@djjs
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Dennis Skahen replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 7 months, 1 week ago
I would also like to become part of your ZOOM. I live in Wisconsin and was diagnosed with IPF in Sept 2021.
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Dennis Skahen replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 1 month ago
Charlene
I was on OFEV from OCT 8, 2021 until 4.11.22 (had a TIA mini-stroke on 4/11/22), and today after speaking to my pulmonologist will be taking Esbriet. While taking OVEV I had no problems at all!
My pulmonologist’s only warning is the potential of sun skin damage. I’ll need to cover up while outside.
Good luck with your decision!
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Dennis Skahen replied to the topic Nearly 40% of IPF Patients in the US Not Prescribed Esbriet or Ofev Despite Effectiveness, Study Reports in the forum Flash Briefings & Podcasts 1 year, 1 month ago
I have IPF being subscribed in Sept 21 and on 100 mg of OFEV since Oct 2021. Mild GI problem, otherwise hoping for good results.
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Dennis Skahen replied to the topic OFEV low 02 levels in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 2 months ago
I have been on 100mg of OFEV twice a day since Oct. 2021 with no drop in 02 levels but a large increase in phlegm. On/off diarrhea.
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Dennis Skahen replied to the topic Do you take OFEV? Take our poll! in the forum Polls & Quizzes 1 year, 3 months ago
Yes Started in Oct. 2021
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Dennis Skahen became a registered member 1 year, 3 months ago
Welcome to the PF forums Dennis!