Biography

Name

Dom2020

Nickname

dom2020

Year of Birth

1943

Gender

Male

Location

Idaho

Relationship

Patient

Short Bio

I got PF in Fall of 2022, only discovered while treating pneumoni. I was in the hospital 10 days, twice, before was well enough to come home. On oxygen 2 L; while I feel good and not so bad most days the doctor told me I should call palliative care. I am on the borderline of the final stage.

Type of Diagnosis

IPF

Treatment / Medical Facility

Pulmonary doctor at the Kootenai Medical Center in Coeur d'Alene Idaho

Current medication regimen

Ofev

Lung transplantation status

eligible, to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

One day at a time. Eat healthy, move slow and not too far.

We’re all on a deadline here, emphasis on the word dead. But that’s no reason to be maudlin about every day. We rejoice in every breath we can have. The rest is in God’s hand.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

Less than one year.

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