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Don Graybill

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@dongraybill

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    Don Graybill replied to the topic Good Saturated Oxygen Levels Yet With Labored Breathing in the forum Living with Pulmonary Fibrosis: 50+ 10 months, 2 weeks ago

    To everyone — thanks for engaging with me as you’ve done.  I appreciate it!  You’ve given lots of great suggestions and I’ll be checking with my pulmonologist about it.

    Yes, Christie.  I was through pulmonary rehab over a year ago.  It would be great if I could do that again but I don’t think that’s possible.

    Thanks!

    Don

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    Don Graybill started the topic Good Saturated Oxygen Levels Yet With Labored Breathing in the forum Living with Pulmonary Fibrosis: 50+ 10 months, 2 weeks ago

    Hi Fellow IPF travelers —

    Got a question for you.  I’ve had IPF now for about nearly 12 years.  I’m on oxygen 24/7 — at 2 lpm at night and from 3.5 to 5 lpm during the day.  During moderate exercise I can usually experience a saturated oxygen level of 95-99% yet my breathing will be rapid and labored (like 50 or so breaths per minute).  T…[Read more]

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    Don Graybill replied to the topic Working after transplant in the forum Pre/Post Lung Transplant 2 years, 1 month ago

    Thanks Eileen, you have been most helpful.  Keep going!  Don

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    Don Graybill replied to the topic Working after transplant in the forum Pre/Post Lung Transplant 2 years, 1 month ago

    Thanks David.  I appreciate your thoughts and insight.  Don

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    Don Graybill replied to the topic Working after transplant in the forum Pre/Post Lung Transplant 2 years, 1 month ago

    Hi Fellow IPFers —

    I really appreciate the posts you folks have provided.  It sounds though the you are younger than I am and are possibly in better circumstances than I am.  I’m 75 and have had IPF since 2011.  I’m now retired with no intentions of returning to work.  While uncertain, my doctor suspects my PF has been influenced by Rhe…[Read more]

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    Don Graybill replied to the topic Hanging Onto Hope as an IPF Patient in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 1 month ago

    Charlene,

     

    I really appreciate your question about hope and want to respond. However I prefer to thoughtfully draft a response offline and then cut and paste. I did this once before several months ago and somehow had many extraneous character interspersed in my test. As I recall you fixed that and indicated a repair was underway to prevent the…[Read more]

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    Don Graybill replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 3 months ago

    Thanks so much Char and Ida for your kind words.  In this IPF journey it is real easy to fall into the mode of simply trying to “survive” life.  Instead I want to “thrive” in it. My shiny new marble each day helps me do that!  Don

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    Don Graybill replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 3 months ago

    <p style=”box-sizing: inherit; margin-top: 0px; caret-color: #555555; color: #555555; font-size: 11px; font-family: ‘Helvetica Neue’;”><span style=”box-sizing: inherit; font-size: 12pt;”>I’ll share my story.  I was diagnosed with IPF in 2011. For some time now I’m been waking up thanking God for my “shiny new marble” and asking God to help me be…[Read more]

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    Don Graybill replied to the topic Is home Air Purification recommended for IPF patients? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 7 months ago

    Thanks Guys for the input.  The purification system I’ve been looking at is a bit more expensive than your leads so I appreciate the suggestions.   But I’m wondering, have any of you done the research to determine what kind of system is needed for combating viruses to make breathing easier for on IPF patient, ie, what size micron particle should i…[Read more]

  • Profile picture of Don Graybill

    Don Graybill started the topic Is home Air Purification recommended for IPF patients? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 7 months ago

    I’m a 75 year old male with IPF since 2011, now on oxygen when active and doing fairly well though breathing is slowing getting more difficult.  We are considering installing a whole house air purification system in our HVAC system.  Do any of you have experience with this and recommend it.  In particular we’re looking at the “Dust Free Air Pu…[Read more]

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    Don Graybill replied to the topic EGCG Green Tea Extract in the forum Clinical Trials 2 years, 8 months ago

    I’ve been taking caffeine free EGCG Green Tea Extract (300 mg with breakfast and dinner daily) for about five months to combat IPF.  I have no evidence that it has helped or not helped my IPF, but I have had no weight loss during this time.

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    Don Graybill changed their profile picture 3 years ago

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    Don Graybill replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years ago

    Thanks Mark.  What you suggests makes sense.  I will follow-up on that,

    Say Mark, I’ve not used this forum much and have a question on process.  You’ll notice a larger amount of extraneous text at the front of my post.  Do you have any idea what I may have done to cause this to occur?  Thanks!

  • Profile picture of Don Graybill

    Don Graybill replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years ago

    <p style=”margin: 0px; font-stretch: normal; font-size: 11px; line-height: normal; font-family: ‘Helvetica Neue’; color: #000000; -webkit-text-stroke-width: initial; -webkit-text-stroke-color: #000000;”><span style=”font-kerning: none;”>Hi Fellow IPF Friends,</span></p>
    <p style=”margin: 0px; font-stretch: normal; font-size: 11px; line-height:…[Read more]

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    Don Graybill posted a new activity comment 4 years, 2 months ago

    Thanks Charlene. My IPF was diagnosed about six years ago and Esbriet has been holding me reasonably stable until about six months ago. The disease seems now to be progressing more rapidly. My doctor is recommending a whole-house indoor air purifier system. I’m wondering if anyone else has gone this route and what kind of system they purchased.…[Read more]

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    Don Graybill became a registered member 4 years, 2 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 2 months ago

      Welcome to the PF forums Don. Thanks for joining us!

    • Profile picture of Don Graybill
      Don Graybill replied 4 years, 2 months ago

      Thanks Charlene. My IPF was diagnosed about six years ago and Esbriet has been holding me reasonably stable until about six months ago. The disease seems now to be progressing more rapidly. My doctor is recommending a whole-house indoor air purifier system. I’m wondering if anyone else has gone this route and what kind of system they purchased.…[Read more]

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