Dub Karriker replied to the topic Life span in the forum Diagnosis Information and General Questions 3 months ago
Hi Pam. Having lost two friends to IPF at around 2.5 years after their diagnosis I was shocked and dismayed when I learned of my diagnosis on MyChart. I am now three years out (with a different pulmonologist) and approaching 68 years old. The disease has barely advanced at all in that time and I am still not on oxygen. I initially was on OFEV for…[Read more]
Dub Karriker replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 months ago
Hi all. I’m new to the group and wanted to share my experience with OFEV.
- How long after your diagnosis of PF/IPF did you start taking Ofev? Within 5 months.
- When you started Ofev, had your Doctor shared with you whether your PF/IPF was mild, moderate or severe? Yes. It is mild heading toward moderate.
- When being prescribed Ofev did you ask…
Dub Karriker became a registered member 3 months ago