Biography

Name

Dynette

Nickname

dynette

Year of Birth

1964

Gender

Female

Location

Kansas City

Relationship

Patient

Short Bio

PF and ILD caused by AI disorder called Sjogrens Syndrome. Also have some joint issues caused by SS. Doing pulmonary rehabilitation. Taking cellcept immune suppressant. Recent diagnosis. I’m 55. This started as a constant dry itchy cough. Blood work showed high ANA.

Supplemental Oxygen

no

Best advice for PF symptom management

I’m told rest, cardio, good nutrition, lower stress, diaphragmatic breathing, loving kindness to yourself and others, meditation

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

18 mos

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