• Earl Robinson posted an update 8 months, 4 weeks ago

    I’m noticing a number of patients interested in Tyvaso. The form is new for me as I have just been approved today and I have been on Tyvaso since early February 2021 for treatment of PAH and IPF. I started at 3 breaths every 4 hours and have graduated to 18 breaths as of the end of April. It seems to cause me to have a short coughing spell after each session due to a tickle in my throat but it is not a big problem. My shortness of breath seems to be diminishing some and I’m able to walk further. I’m on O2 24/7 at 8L day and 6L when sleeping. I can use my portable 6L pulse unit when I’m driving in the car or sitting for a spell. I hope this helps someone, it seems to be helping me. I’m also on OFEV 100mg 2X daily.

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