elizabeth martin replied to the topic Life span in the forum Diagnosis Information and General Questions 1 year ago
I’m convinced that the 3-5 years can be misleading. For many people, there have been years and years of bouts of shortness of breath, dyspnea, coughing, etc., and the person is diagnosed with pneumonia, the flu, bronchitis, or some other respiratory illness. Many suffer for a decade or more with those symptoms until they actually see a…[Read more]
elizabeth martin replied to the topic IPF patient symptoms in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year ago
I, too, have started to have thick plugs of mucous. I usually spend a good bit of time in the morning coughing up the crap. I cannot imagine what it is like for someone who is frail and who does not have the ability to do deep coughing. I have an appointment with my pulmonologist next week and I’m sure she will say that this is the normal…[Read more]
elizabeth martin replied to the topic Investigation in the forum Using Our Forums 2 years, 6 months ago
I am 71 yrs old, a retired registered nurse. I had VATS (Video Assisted Thoracotomy) and a diagnosis of IPF in 2018, not sure why my pulmonologist chose that instead of a bronchoscopy. VATS is a very invasive surgery and very painful as rated by the NIH. The surgeon must go through your ribs to get the lung specimen, this involves damage to the…[Read more]
elizabeth martin became a registered member 2 years, 6 months ago
Hello Elizabeth, thank you for joining your pulmonary fibrosis forum. Welcome!