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Ed Casey replied to the topic Dad was placed on end-of-life care in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 10 months ago
I’m so sorry for your loss. I’m 79 years old and was diagnosed with IPF 6 years and 3 days ago following a left lung biopsy. I couldn’t agree with you more about starting palliative care sooner rather than later. I’m on oxygen 24/7. I’ve been a hospice patient now for ten weeks. It has made a difference in my life, but equally important it has…[Read more]
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Ed Casey replied to the topic How does taking Prednisone help IPF patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 2 months ago
I was diagnosed with IPF 5 years and 9 months ago. I’m 79 years old. About a month ago I became out of breath no matter how minor the activity. Recovering was very uncomfortable. I contacted my doctor and he prescribed 30mg of prednisone for two weeks. Within a couple of days I was recovering from being out of breath much faster. I’m now t…[Read more]
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Ed Casey replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis Information and General Questions 2 years, 7 months ago
Hi Charlene
I will remain on 10mg of prednisone going forward on permeant basis.
Kindest regards,
Ed
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Ed Casey replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis Information and General Questions 2 years, 7 months ago
Hi Charlene,
I was diagnosed with IPF in March 2015. In February I asked my doctor if I could take prednisone to help with my lack of energy. Im 78 years old. He prescribed 20mg for two weeks and 10mg for two weeks and it made a huge difference in the way I felt. I am now on 10mg going forward. The only side effect I’ve experienced is a smal…[Read more]
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Ed Casey became a registered member 2 years, 8 months ago
Hello Ed, welcome and thank you for joining your pulmonary fibrosis forum!
Hello Ed, some of our members do take prednisone and I would say almost all of them have pulmonary fibrosis and not IPF. There are several forum topics related to your question. Take care, Mark
Ed, for some reason your question didn’t show up on our main page and I was only able to read it in my email. Sorry about that. I will notify the tech dept that this occurred. Thank you, mark.