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Ed Casey

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@edcasey

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    Ed Casey replied to the topic Dad was placed on end-of-life care in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 10 months ago

    I’m so sorry for your loss. I’m 79 years old and was diagnosed with IPF 6 years and 3 days ago following a left lung biopsy. I couldn’t agree with you more about starting palliative care sooner rather than later. I’m on oxygen 24/7. I’ve been a hospice patient now for ten weeks. It has made a difference in my life, but equally important it has…[Read more]

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    Ed Casey replied to the topic How does taking Prednisone help IPF patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 2 months ago

    I was diagnosed with IPF 5 years and 9 months ago.  I’m 79 years old.  About a month ago I became out of breath no matter how minor the activity.  Recovering was very uncomfortable.  I contacted my doctor and he prescribed 30mg of prednisone for two weeks.  Within a couple of days I was recovering from being out of breath much faster.  I’m now t…[Read more]

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    Ed Casey replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 7 months ago

    Hi Charlene

    I will remain on 10mg of prednisone going forward on permeant basis.

    Kindest regards,

     

    Ed

     

  • Profile picture of Ed Casey

    Ed Casey replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 7 months ago

    Hi Charlene,

    I was diagnosed with IPF in March 2015.  In February I asked my doctor if I could take prednisone to help with my lack of energy.  Im 78 years old.  He prescribed 20mg for two weeks and 10mg for two weeks and it made a huge difference in the way I felt.  I am now on 10mg going forward.  The only side effect I’ve experienced is a smal…[Read more]

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    Ed Casey became a registered member 2 years, 8 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 8 months ago

      Hello Ed, welcome and thank you for joining your pulmonary fibrosis forum!

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 8 months ago

      Hello Ed, some of our members do take prednisone and I would say almost all of them have pulmonary fibrosis and not IPF. There are several forum topics related to your question. Take care, Mark

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 8 months ago

      Ed, for some reason your question didn’t show up on our main page and I was only able to read it in my email. Sorry about that. I will notify the tech dept that this occurred. Thank you, mark.

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