Ed
Forum Replies Created
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All OxyGo POC’s are FAA approved…https://oxygo.life/faqs Remember you need 150% battery life for the trip. Make sure you contact your airline and they will tell how many batteries you need. Take into acct if the batteries have been used a lot as they can deliver less life than you think. You will most likely have to use at least the setting as you do for activity as cabins are normally pressurized at 8000-10000 feet. My wife had to use her POC even when she was in your situation because riding in a plane is like being up in the mountains. My wife now needs hers to sleep with a CPAP so we bought a SimplyGo that does pulse and up to 2 lpm continuous. Even before the CPAP, that requires continuous flow, she was not able to sleep with her pulse machine without triggering alarms all night.
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Gabapentin stopped my wife’s terrible cough in 1 day.
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My wife’s DLCO went down 10% between her tests in Aug 2018 and April 2019. Her tests yesterday, Aug 2019 went back up 10% to her 2018 numbers. Other numbers stayed the same, but she dropped to 88% on her 6 min walk, never below the low 90’s before. She is not on O2 but her Dr. is retesting in 3 months.
Maybe your DLCO will go back up as hers did. Good luck.
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Not sure if this will help as I am a caregiver, not afflicted with this dreaded disease, but I have been having the same problem with dizziness. I started about a week ago where every time I rolled over in bed the room would start spinning and become very light headed. Also getting out of bed too fast would have the same result. Two days ago I bent down to pick up something on the floor and almost passed out. Being a stubborn man, aren’t most of us males, I put it off as a fluke. Yesterday, I was bending over the sink to wash my hair before going for a hair cut. I got so dizzy and light headed that I almost passed out. A couple minutes later I started feeling nauseous but did not vomit. This scared me enough to go to urgent care. After examination and an EKG, the diagnosis was a form of Vertigo. I was given a medication called meclizne 25 mg. It is available over the counter and is very similar to Benadryl. The DR explained that there are canals going to your ears and eyes and crystal can form blocking one that causes the brain to miss interpret what you are seeing and cause this dizziness and fainting. The pill just stops the symptoms and worked very quickly. The problem will usually go away by itself in a week or two. If not, there is physical rehab that can be done to rectify the problem. Another thing that made me seek treatment was watching news reports about our Detroit Lions quarterbacks wife. She was getting dizzy playing with her kids and was urged by the Lions Drs to seek treatment. Turned out she had a brain tumor. After surgery, she came home but within a day was back in the hospital. She faces all kinds of problems for the rest of her life. Her’s is a one in a million thing, but I realized it was worth me getting checked out. My wife needs me now and more in the future.
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My wife has a POC through Medicare from Lincare. They will not supply extra batteries for flights or travel. We had to purchase one ourselves for $400.00
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Best wishes to you too Lorraine.
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My wife did nothing. The DLCO came back all by itself.