Biography

Name	Jim DeWolfe
Nickname	jim-dewolfe
Year of Birth	09/17/1946
Gender	Male
Location	Frisco, Texas
Relationship	Patient
Short Bio	I have Covid-19 induced PF after 2 periods on a ventilator and having a tracheotomy . I was on the “brink” for 90 days in the hospital. It has now been a full year since my onset of Covid and I was diagnosed with IPF 9 months ago. My lung capacity is in the mid 40’s and I am 75 years of age. When all of this happened I was in extremely good health and very active. I just woke up in a hospital bed after 3 months not undersranding where I was or why. I lost 60 lbs. and couldn’t walk, think or get up to use the bathroom. I am now able to walk some and do fall often. I have a walker, Cain, wheelchair… I want to become active again but the rehab is coming along too slowly for me. I am on 7 units using my concentrator, at home and I have a Inogen One G-2 portable system which does not give me but 3 units. I checked on the G-5 unit and Medicare as well as my doctor say it is not approved because it does not go up high enough and it is a pulse system. My world changed so radically and without my expectations of ever being in this position. I’m usually a fast learner and love to win but this has been a challenge that I haven’t been able to conquer… NO AT ALL .. NOT YET❗️
Type of Diagnosis	PF of known aetiology
Treatment / Medical Facility	Numerous/ UT Southwestern / Southwest PULMOMNOLOGIST
Current medication regimen	It is being reevaluated at this time
Lung transplantation status	to be determined
Supplemental Oxygen	yes
Best advice for PF symptom management	They say that due to the Covid-19 onset that they are not at the stage of knowing how it will progress . Having cat-scans every 6 months . Seeing doctors and ER periodically.will be beginning a new test and monitoring regiment to help myself and others with the testing. This begins next week. I was just confirmed as a patient for this monitoring and consultation which will include som occasional changes in meds and rehab, etc.
Are you currently taking an anti-fibrotic medication?	no
How did you find us?	Physician
How long have you or the person that you are caring for had PF?	May 13 2020
Privacy Policy and Terms of Use	I agree

Jim DeWolfe