Eileen Owen

I’ve had 4 appointments with different doctors. My transplant clinic, I have had 2 visits with and was quite satisfied with them. They are 2 hours away and I didn’t mind not doing that driving. I will see them for my next appointment in early June as I am 2 years post transplant so I have certain tests that they want me there for I.e. 6 minute wal…[Read more]

Hi Linda,

I always knew I wanted a transplant. I received one last year at the age of 69. I was officially diagnosed in 2013 with IPF though we had walked down that path for about 6 months before I had a lung biopsy to confirm. When I was doing well and only on minimal oxygen, I debated with myself as to whether I would try to get one and it…[Read more]

That is a valid concern. You are right, though, the lungs have to be a perfect match, so though someone is waiting for their 3rd pair, there may be something that moves them, up the list. Others have factors that may be harder to match. I have had a transplant and mentioned to my husband that if I was having rejection issues, I would want to be…[Read more]

I had my lung transplant 11 months ago and I too had tremors in my hands and also felt that my legs were shaky. I had the exact same symptoms as you reported and had to ask family members to call me and not to text as it was too frustrating trying to text back. One of my doctors prescribed clonezepam .5 mg 1/2 tablet twice a day. He said I might…[Read more]