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Eileen Owen replied to the topic Virtual Doctor Visits: Will They be the New Norm? in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 1 month ago
I’ve had 4 appointments with different doctors. My transplant clinic, I have had 2 visits with and was quite satisfied with them. They are 2 hours away and I didn’t mind not doing that driving. I will see them for my next appointment in early June as I am 2 years post transplant so I have certain tests that they want me there for I.e. 6 minute wal…[Read more]
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Eileen Owen replied to the topic Receiving Multiple Lung Transplants in the forum Pre/Post Lung Transplant 4 years, 1 month ago
Hi Linda,
I always knew I wanted a transplant. I received one last year at the age of 69. I was officially diagnosed in 2013 with IPF though we had walked down that path for about 6 months before I had a lung biopsy to confirm. When I was doing well and only on minimal oxygen, I debated with myself as to whether I would try to get one and it…[Read more]
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Eileen Owen replied to the topic Receiving Multiple Lung Transplants in the forum Pre/Post Lung Transplant 4 years, 1 month ago
That is a valid concern. You are right, though, the lungs have to be a perfect match, so though someone is waiting for their 3rd pair, there may be something that moves them, up the list. Others have factors that may be harder to match. I have had a transplant and mentioned to my husband that if I was having rejection issues, I would want to be…[Read more]
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Eileen Owen replied to the topic Tremors as a Side Effect of Transplant Meds in the forum Pre/Post Lung Transplant 4 years, 2 months ago
I had my lung transplant 11 months ago and I too had tremors in my hands and also felt that my legs were shaky. I had the exact same symptoms as you reported and had to ask family members to call me and not to text as it was too frustrating trying to text back. One of my doctors prescribed clonezepam .5 mg 1/2 tablet twice a day. He said I might…[Read more]
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Eileen Owen became a registered member 4 years, 2 months ago
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Eileen Owen's profile was updated 4 years, 2 months ago
Hello Eileen, welcome to your pulmonary fibrosis forum! I hope you find this forum to be a safe place to discuss all aspects of pulmonary fibrosis. Thank you