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Biography
Name
Fay
Nickname
fay
Year of Birth
1950
Gender
Female
Location
Australia
Relationship
Patient
Short Bio
Diagnosed with Polymyositis in 2015 with resulting ILD – Pulmonary Fibrosis. 6 years post diagnosis had my first hospitalisation and a deterioration in the PF scarring.
Type of Diagnosis
PF of known aetiology
Treatment / Medical Facility
Private Rheumatologist, Private Lung Physician,
Lung transplantation status
ineligible
Supplemental Oxygen
no
Best advice for PF symptom management
Be diligent in uptake of medication
Regular exercise- if possible
Positive attitude
Keel up with blood tests and appointments
Are you currently taking an anti-fibrotic medication?
no
How did you find us?
PF News Website
How long have you or the person that you are caring for had PF?
6 years
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