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Carmen Quintas replied to the topic OFEV and Surgery in the forum Ofev (Nintedanib) 2 months ago
Ask the surgeon and your pulmonologist
Wishing you good luck with your surgery
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Carmen Quintas replied to the topic Questions about Ofev in the forum Using Our Forums 2 months, 1 week ago
I have been on OFEV since March 2022.I started on 150 mg 2X a day but had severe stomach issues.I am now on 100mg 2 X a day.I am tolerating it much better.I tried what someone here recommended,and it has made a huge difference.I drink half of a protein shake ,have breakfast and then take OFEV.I then drink the other half of the protein shake.
Two…[Read more] -
Carmen Quintas replied to the topic Cost of Ofev in the forum Ofev (Nintedanib) 3 months, 2 weeks ago
Hi,
I have been on OFEV for almost a year.I am now on Medicare, so that I no longer qualify for a pharmaceutical to pick up my copayments, which total thousands of dollars a year.I have been told that some Medicare Part D providers pay out more for the OFEV coverage, thus lowering the amount of the co payments. I am presently on Emblem…[Read more] -
Carmen Quintas replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 1 week ago
I too would love to attend, but not able to because of Thanksgiving.Please , can this be made available to those of us who are not able to attend.Thank you very much
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Carmen Quintas replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 1 week ago
T
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Carmen Quintas replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 6 months, 4 weeks ago
My pulmonologist lower my OFEV dose to 100mg 2x a day.My insurance will not pay for a combination dose of 150/100.I will be off of OFEV for a week or two before going on my new lower dosage.It will give my stomach time to settle down before starting the new lower dose.Keeping my fingers crossed that I’ll tolerate it well.
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Carmen Quintas replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 7 months ago
Hi,
I ‘ve been taking 150mg of OFEV 2X a day.I started in March.I did great until July.In July I stared with diarrhea issues.I’ve been struggling ever since.It is definitely a quality of life issue.I’ve been taking Imodium every day.Sometimes it’s 2 or 3 times a days ,depending on my plans for the day.I just made an appointment with a gastroe…[Read more]
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Carmen Quintas posted a new activity comment 7 months ago
Hi
I’m glad I found you too.I’ve been on OFEV since March2022.I did really well with no side effects until July.I have had a lot of diarrhea ,on a daily basis since July. I have been taking Imodium on a daily basis.It’s definitely affecting my quality of life.I’ve just scheduled an appointment with a gastroenterologist, hoping that he can help.An…[Read more] -
Carmen Quintas became a registered member 7 months, 3 weeks ago
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A belated welcome to the PF forums Carmen, we’re glad you found us.
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Hi
I’m glad I found you too.I’ve been on OFEV since March2022.I did really well with no side effects until July.I have had a lot of diarrhea ,on a daily basis since July. I have been taking Imodium on a daily basis.It’s definitely affecting my quality of life.I’ve just scheduled an appointment with a gastroenterologist, hoping that he can help.An…[Read more]-
Hi Carmen,
I recommend posting this in the OFEV sub-forum, which can be found here: https://pulmonaryfibrosisnews.com/forums/forums/forum/ofev-nintedanib/I don’t have any experience with OFEV personally so am not the best person to give advice, but there are loads of people here who can 🙂 And many posts in that forum already which might have…[Read more]
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Hi Carmen,
I recommend posting this in the OFEV sub-forum, which can be found here: https://pulmonaryfibrosisnews.com/forums/forums/forum/ofev-nintedanib/
I don’t have any experience with OFEV personally so am not the best person to give advice, but there are loads of people here who can 🙂 And many posts in that forum already which might have…[Read more]