Pulmonary Fibrosis News Forums | Carmen Quintas | Activity https://pulmonaryfibrosisnews.com/forums/members/finquin2354yahoo-com/activity/ Activity feed for Carmen Quintas. Sat, 11 Apr 2026 15:01:47 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 e6974fc46e6493f8c866bc89a6f179cf Carmen replied to the discussion On Ofev for nine months and had no stomach issues. Now having diarrhea constant in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/on-ofev-for-nine-months-and-had-no-stomach-issues-now-having-diarrhea-constant/#post-37199 Thu, 20 Jun 2024 19:46:21 -0500 Reply to On Ofev for nine months and had no stomach issues. Now having diarrhea constant

Hi,

The exact same thing happened to me.I was on OFEV 150mg, and exactly 9 months after being on it. I started to have severe stomach/diarrhea issues, where I too was scared to leave the house. They reduced the OFev to 100mg. I make sure to have a lot of protein in the am before I take my morning dose.I have a high protein drink.I add 1 cup…

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]]> 8dd08d82203790c0b0bed8cff47e88b8 Carmen replied to the discussion OFEV and Surgery in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-and-surgery/#post-34787 Tue, 28 Mar 2023 23:41:52 -0500 Reply to OFEV and Surgery

Ask the surgeon and your pulmonologist

Wishing you good luck with your surgery

]]> e4a7ae54776e1d5423c8d8c5a4f1e945 Carmen replied to the discussion Questions about Ofev in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/questions-about-ofev/#post-34691 Tue, 21 Mar 2023 23:46:44 -0500 Reply to Questions about Ofev

I have been on OFEV since March 2022.I started on 150 mg 2X a day but had severe stomach issues.I am now on 100mg 2 X a day.I am tolerating it much better.I tried what someone here recommended,and it has made  a huge difference.I drink half of a protein shake ,have breakfast and then take OFEV.I then drink the other half of the protein… Read more

]]> 73c6bee196269a6c1f7c84bb0125038f Carmen replied to the discussion Cost of Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/cost-of-ofev/#post-34359 Wed, 08 Feb 2023 16:05:38 -0600 Reply to Cost of Ofev

Hi,
I have been on OFEV for almost a year.I am now on Medicare, so that I no longer qualify for a pharmaceutical to pick up my copayments, which total thousands of dollars a year.I have been told that some Medicare Part D providers pay out more for the OFEV coverage, thus lowering the amount of the co payments. I am presently on… Read more

]]> 7ffbe0d7d0c143c83918b79b619925ea Carmen replied to the discussion Heal scar tissue - Is it possible? 2nd zoom call in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/heal-scar-tissue-is-it-possible-2nd-zoom-call/#post-33664 Thu, 24 Nov 2022 03:57:44 -0600 Reply to Heal scar tissue - Is it possible? 2nd zoom call

I too would love to attend, but not able to because of Thanksgiving.Please , can this be made available to those of us who are not able to attend.Thank you very much

]]> f85dc140ec21c4e34086a2f072e536a9 Carmen replied to the discussion Heal scar tissue - Is it possible? 2nd zoom call in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/heal-scar-tissue-is-it-possible-2nd-zoom-call/#post-33663 Wed, 23 Nov 2022 18:16:53 -0600 Reply to Heal scar tissue - Is it possible? 2nd zoom call

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]]> 36fc59f9ed924fce1d9f21d85aa46027 Carmen replied to the discussion Split Ofev doseages in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/split-ofev-doseages/#post-33457 Wed, 02 Nov 2022 12:02:39 -0500 Reply to Split Ofev doseages

My pulmonologist lower my OFEV dose to 100mg 2x a day.My insurance will not pay for a combination dose of 150/100.I will be off of OFEV for a week or two before going on my new lower dosage.It will give my stomach time to settle down before starting the new lower dose.Keeping my fingers crossed that I’ll tolerate it well.

]]> b468fee7da9306a372ccebc90792776d Carmen replied to the discussion Split Ofev doseages in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/split-ofev-doseages/#post-33416 Sat, 29 Oct 2022 14:14:51 -0500 Reply to Split Ofev doseages

Hi,

I ‘ve been taking 150mg of OFEV 2X a day.I started in March.I did great until July.In July I stared with diarrhea issues.I’ve been struggling ever since.It is definitely a quality of life issue.I’ve been taking Imodium every day.Sometimes it’s 2 or 3 times a days ,depending on my plans for the day.I just made an appointment with a… Read more

]]> 11bface3e0a3cc569eb01ed2d8b1680f Carmen posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/35395/#acomment-35751 Sat, 29 Oct 2022 02:22:44 -0500 Hi
I’m glad I found you too.I’ve been on OFEV since March2022.I did really well with no side effects until July.I have had a lot of diarrhea ,on a daily basis since July. I have been taking Imodium on a daily basis.It’s definitely affecting my quality of life.I’ve just scheduled an appointment with a gastroenterologist, hoping that he can… Read more

In reply to - Carmen became a registered member ]]> 4e237f010cdb6e0e7f2d7d61dcd2079b Carmen became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/35395/ Sun, 09 Oct 2022 22:13:55 -0500 3